Never thought I’d need this group again

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Hello all,

I’ve been around the site a long time and was a member of this group when our daughter was going through a long long illness with a blood cancer. She’s doing ok though still has ongoing problems. 
since then I’ve had breast cancer (still on tablets) and ‘hang’ around that group a lot.....

Now it seems my husband of 51 years has renal cancer with secondaries, he’s still not been told (I know as was an OT and learnt from his previous ‘inconclusive’ scan) but is in hospital since Thursday night, with very low haemoglobin but high potassium, last night very very sick, now nil by mouth but double cannula for fluids and glucose as he’s diabetic. All started in early January when he peed blood and clots, due to Covid any diagnosis and treatment has got so delayed. They haven’t been able to do anything except a straight CT scan as potassium levels don’t allow for contrast, even. 

I’m scared, gutted and so angry that it’s taking this long. His annual diabetic checks showed a concern about kidney function for the last couple of years but his GP has closed ranks and I got a ‘whitewash’ letter after I complained. 

Thinking of all folk who are struggling, the wee small hours are the worst......hugs to carers xxx

  • This mornings news, the yukky dye he had to drink yesterday before (at long last!!!!) his kidney biopsies, showed by X-ray that things are moving through so his spirits have been hugely lifted by the fact he’s now allowed coffee, soup etc but nothing more adventurous for a further 24 hours. 

    hugs xxx

    Moomy

    • Hi Moomy,That sounds encouraging.Love & hugs to you both.Jane xxx
  • And it’s a few steps backwards, he’s back on very little by mouth (water sips plus the occasional cup of tea) as stomach isn’t working yet. They told him this morning it could take up to a month, very frustrating. 
    Hugs xxx

    Moomy