The struggle to come to terms with my husbands death

FormerMember
FormerMember
  • 5 replies
  • 37 subscribers
  • 879 views

I dont know why I'm writing this? Probably reaching out to people how have an understanding of this nightmare of a journey. 

Here goes!!!

Martin had 3 seizures on 4th Nov 20, he had literally just stepped in the door from work.Anyway taken to hospital to be investigated upon which they found a tumour on his brain.

After scans, tests and biopsy we was told he had stage 4 Glioblastoma it was treatable not curable  they said but were willing to treat it.

Roll on to December he had his planning scan and given dates for 6 weeks of radiotherapy and chemotherapy treatment. On the day of his 2and MRI scan he started tripping/stumbling on his right side.

Anyway went to see consultant before treatment by this time he was in a wheelchair and speech was alot worse.she gave us the news Martin's tumour had grown and with his symptoms worsening they were not willing to do chemo and would instead do 3 weeks radiotherapy instead of 6.We were to have weekly check ups with consultant before treatment starting the following week.

We attended appointment with consultant to again be told she was concerned his body wasnt strong enough as he had been put on highest dose of steroids with no signs of any improvement, therefore all treatment was pulled.

We were angry and emotional on the way home knowing we had to tell our kids age 21 & 16 that there was nothing else hospital could do for their dad and we just had to enjoy/embrace what time we had left together.Martin told us "weve got to find the happiness,joy and beauty in life" and we certainly did just that!!

On 18.01.21 Martin passed away at home just 10 weeks after that dreadful night when he had the seizures..SleepySleepyI miss him so much and the house seems so empty without him, but the people around me keep moving when my world has stopped abruptly.We speak about him daily and laugh at the happy memories we have of him, but I'm struggling on a night time I'm consumed by emotions I never thought I could ever feel. 

Thanks for reading...if anybody does read this? 

Rachel x

  • Oh Ozz76 (Rachel)

    I just want to reach out and give you a huge hug.

    I hear you. I feel your pain and to be honest I'm a wee bit scared of when I'm in exactly the same situation. Time has been kinder to us and my husband is still with us but its a hell of a journey for all of us and the sands of time are running through here. 

    Journaling is a good way to get your feelings out. I've filled 3 journals since our diagnosis last August. You can write down the feelings and words that you can't say out loud. The ones that hurt too much to say out loud. The ones that are too scary to say out loud. 

    Stay strong. You've had a traumatic whirlwind nightmare journey over the past few month. Be gentle with yourself and patient with yourself. You'd be saying the same to others so say it to yourself.

    take care

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • FormerMember
    FormerMember in reply to Wee Me

    Thankyou xx That's very kind of you to say.

    All I can say it might get damn frustrating at times but savour all those happy memories you make together.Thats what is keeping us going by talking and laughing at those times.weve had memory bears and cushions made and since getting mine touch wood I've slept through most nights as I was only getting 3 hours at the most xx

    Look after yourselves x Take care

  • Oh sweetheart, I've been where you are and it's just like a punch to the heart. If I could hug you, I would.

    The best advice I got given after my late wife passed was to not try and think how to live my life without her, but how to best live with the love she left behind.

    Martin was on the money when he said to look for happiness, joy and beauty in the world.

    My wife sent me a delayed SMS message (received 10 weeks after she passed - greatest shit-my-pants moment I've ever had) that thanked me for everything I did for her and that she takes my love with her and that would be enough. She asked me to love our kids and grandkids unconditionally and constantly. She asked me to find another love. She TOLD me to not let cancer turn me into an angry old man.

    As my youngest son (the smart arse one) said, "Guess she did have the last word".

    I couldn't have had a better last word.

    Hang in there sweetheart. I won't tell you that it gets easier, or it hurts less over time. or, my favourite, "time heals all wounds". The grief hurts - like a bitch. But, over time, I've come to accept it. Her passing has become a part of me now. I think of her every day and re-read her SMS every day and do my utmost to honour her wishes.

    At the end of your journey, the sun will still rise. As will you.

    Peace,
    Ewen :-)

    The day after your carers journey ends, the sun will still rise.
    As will you.
  • FormerMember
    FormerMember in reply to panic

    Thankyou for your lovely kind words!! Yes that's what keeps me going.. knowing he will be smiling down on us as we continue to make him proud each and every day xx

    Rachel xx

  • Hey Rachel,

    There's an old Samoan funeral blessing that sums it up perfectly;

    Let your memories be loved.
    Let your beloved be your memories.

    Every day, look back on what you did for Martin with pride. Every day, look forward to doing something that would make him proud.

    Hate cancer by all means, but try and find a way to love life.

    It's the least we can do and it's the best we can do.

    Give your kids a hug from me and give yourself one as well. You are all carers and you all deserve one.

    Peace,
    Ewen :-)

    The day after your carers journey ends, the sun will still rise.
    As will you.