My husband was diagnosed with Stage 4 Terminal Lung Cancer in Jan 2020. He had surgery in Jan 2020 to remove a spine tumour then sent home. He could hardly walk but gradually I did physio with him and we got him doing a bit of walking. But used a wheelchair when going out.
We managed to go on 5 holidays last one September 2020, but since then he has gradually got worse. He is now totally bedbound, I am caring for him totally on my own. He doesn't want carers, I even do his lung drain 3 x a week. I am getting hard any sleep and now he is so confused. He stopped eating at beginning of December but is still drinking a little.
I am at my wits end, I cry everyday, I can't cope. If he went into the hospice they don't allow any visitors due to covid.
I struggle bathing him as he just crys with pain, changing the bed is a nightmare. I am having to change it alot due to incontinence.
I feel so guilty that I feel like this. I just want to have help but he doesn't want anyone coming in. If this his last request I have to abide by what he wants.
He is so confused now, he sleeps so much. I losing him, how can I cope. The thought of finding him gone, fills me with fear. I have no family, his family don't hardly ring and his friends are the same. I feel so isolated and lost my job due to covid in July so money is tough. Plus landlord has send eviction notice for April (we have never missed a payment).
My life is spirling out of control and I feel so lonely and depressed, I wish I could have my friends round just for a chat and a brew.
Oh I do feel for you. I am having the same issues more or less. I feel isolated because of COVID and terrified to ask for help in case he goes into hospital and I never see him again. I don’t know the answer but you are not alone xxx You’re doing an amazing job .
Hi Cazzie,
I'm so sorry that your going through all this. Its all hard enough but trying to do everything on your own sounds almost impossible. It sounds like it might be time to get some support for you and your husband. I understand that you don't want to as it's your husband's wish not to have anyone in to help with his care but maybe if you could just get someone to help care for him during the night you can at least get some sleep. That will help you to cope better and care for him in the day. Citizens advice might be able to offer you advice about your eviction notice too that's the last thing you need to worry about at the minute. Can you speak to your husbands GP or oncology nurse to get some help arranged?
I know this is cliche and I'm rubbish at this myself but you can't care for him if you're not well and you need some sleep. You'll still be caring for him at home, which he wants but I'm sure he wouldn't want you to break and you sound broken already. My husband has incurable cancer so I do understand your want to carry out his wishes but you might find that the community nurses can give your husband some pain relief to help him cope and feel better too which in turns helps you cope.
It sounds like you've made some lovely memories over the last 12 months having all those holidays. You sound very much like you've done and continue to do an amazing job caring for your husband. I'm sending you a virtual hug and hoping that someone will be able to give you a proper hug in the not too distant future.
Sending you love and best wishes xx
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