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FormerMember
FormerMember
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Hi, on Monday my husband (47) was diagnosed with colon cancer.  And I don't now how to take each day as it comes now.  we don't have any family as we've both lost both our parents to various cancers already.  So the C  word has destroyed us both.  we have been together 26 years and he's never had a sick day in his life and now he has a small manadarin size tunour in his bowel.  

We've no real friends yet as our lives have brought us recently to Edinburgh.  I work from home and the kids are older so never get to meet the parents anymomre.

I'm lost here and I just need to her a voice that says all is not lost yet...He is my world 

  • Hi and welcome to the club nobody ever wanted to join. Very much hear what you say about having to work out how to take each day as it comes, took me time to get there and only then mostly with the help of a living with less stress course from Maggies.

    My wife has had cancer now for over 6 years however for us we are both now in a happy land of living with rather than dying from cancer - but it took a lot of work.

    One of the things I found early on when I was struggling was many friends did not understand or worse would be everything down to dealing with the cancer making other problems actually worse - one of the plus points of being here is we can empathise.

    Come here whenever you need, somebody is always listening and if you need something more quick fix you can ring the helpline as it is there for everyone.

    <<hugs>>

    Steve

    Community Champion Badge

  • FormerMember
    FormerMember in reply to src60

    Hi Steve, 

    Thank you for writing. I was so low that I looked up where the nearest Maggies was and went right over. Walked in the door and the first person I saw walked over to me and gave me a hug and just listened. I'm hoping that I can get my husband over as he so needs some one to talk to besides me right now. 

    I'm just trying to find out how to put one foot infront of the other and what's happening is so unreal.

    We received a scan date, 10days from, now. We glad yet this makes it all so much more real now. It means this is happening to him and our lives.

    It means so much that you wrote and am thrilled your wife is here. 

    Thank you so much again. 

  • Hi 

    I am glad you have found support! I don’t know that we have a maggies! We do have a St Margaret’s hospice, is that what you mean? I went there myself off my own back as not getting support from the hospital ad they were fantastic! I was tearful and the volunteer receptionist, took me to a lovely room, got me a cuppa, sat with me and got the lead nurse to come and help who then never rushed me and offered advice and support! Our Gp referred on Monday evening and we had a call on Wednesday with an appointment for this Tuesday! My stress levels halved by just being there! X

  • Hi 

    I am glad you have found support! I don’t know that we have a maggies! We do have a St Margaret’s hospice, is that what you mean? I went there myself off my own back as not getting support from the hospital ad they were fantastic! I was tearful and the volunteer receptionist, took me to a lovely room, got me a cuppa, sat with me and got the lead nurse to come and help who then never rushed me and offered advice and support! Our Gp referred on Monday evening and we had a call on Wednesday with an appointment for this Tuesday! My stress levels halved by just being there! X

  • Sorry I posted that twice! I dropped my phone last week and cracked my screen! It is going a bit nuts! Fortunately my son will fix it for me! And at the end of the day, that is a minor stress and the moment! Joy

  • FormerMember
    FormerMember

    Hi so sorry to read your post. Apart from the fact my husband has just been diagnosed with lung cancer I’m in exactly the same position as you!

    My husband has been my best friend, Rock & the strong one in our marriage for the past 36 years. We don’t have any family living around us. Our sons both live over 200 miles away, they have been brilliant & come to hospital consultations with us but they’re not “on the doorstep” for my constant worries & anxiety’s.

    We have no real friends either, they’ve all moved away. I’ve been unable to work for several years due to many health issues (none too serious, just painful) so no colleagues. 

    My husband was also very healthy & rarely had a sick day & now he’s got a 5.5cm tumour in his right lung. It’s also in lymph node in chest. He’s got to have a operation to remove part of the lung then chemo. The hospital for the operation  is a 75mile round trip & the one where he sees the consultants & pre/follow up appointments is a 50 mile round trip, I don’t drive. It’s all a nightmare & I can’t see an end to it. 

    Like yourself I’m lost, I’m so frightened about everything. I dread the post with more appointments & bad news & spend so much time in tears. My anxieties are terrible & all I want is to try to support my husband.

    As you say ....he is my world ....

  • FormerMember
    FormerMember in reply to FormerMember

    Hi there, I may  understand a little how you feel. My partner is receiving palliative care for pancreatic cancer. I too have no real friends, and a work colleague  who I am on good terms with but never meet socially. I dread the future but find company , comfort and understanding on these forums at the present. We have no appointments really, he may have the fluid in his abdomen drained at some point. The district nurse and palliative care  team and doctor call in regularly. I don't drive either so I can well understand how daunting getting to all these appointments can be. I am sure you will get some great advice from others on here in a similar situation, macmillan support give great advice on the phone give them a ring, if you can take back some control  by making plans it may seem a little easier to bear. Keep posting, I wish you well, hugs Pam x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi there, I may  understand a little how you feel. My partner is receiving palliative care for pancreatic cancer. I too have no real friends, and a work colleague  who I am on good terms with but never meet socially. I dread the future but find company , comfort and understanding on these forums at the present. We have no appointments really, he may have the fluid in his abdomen drained at some point. The district nurse and palliative care  team and doctor call in regularly. I don't drive either so I can well understand how daunting getting to all these appointments can be. I am sure you will get some great advice from others on here in a similar situation, macmillan support give great advice on the phone give them a ring, if you can take back some control  by making plans it may seem a little easier to bear. Keep posting, I wish you well, hugs Pam x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Pam, thanks for replying. I’m so sorry to hear that your partner is receiving palliative care, it must be so hard for you. 

    I wish you well & hope to hear from you again as you say the forum does provide some friendship when you feel helpless & alone.

    best wishes & hugs Helen x

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou xx