Hello I am new to this forum I was a stem cell donor for my daughter 4 weeks ago she has sezary syndrome cancer the only cure is if the stem cell transplant works , my daughters been in hospital for 7 weeks she’s really weak and the drs are now thinking my daughters body is rejecting my stemcells my daughter is only 31 with a 5 year old daughter and it’s the first time through her having cancer for the last 3 years that I feel she might die and it scares me is there any other carers mothers going through similar stuff
I'm so sorry that you've had to join us and to hear about your daughter, it must be a terrible time for you and would like to say that whilst there may not be many mothers on this site looking after daughters with this condition you will get support from the many mothers on here but it's not only from the mothers you will find that everyone on this site is very supportive of each other and you can come on at anytime for a chat, rant and rave or let off steam everyone will understand where you are coming from
I'd like to suggest that you consider joining our T-cell lymphomas forum group and introduce yourself to the members who probably will have more knowledge of the condition and you can ask them any questions there, they are a very friendly group of people
You maybe interested to know that we have a group called Stem cell transplants for blood cancer forum that you might want to join and we have a very knowledgeable person in the group that you can chat to and ask questions.
I want you to know that you are not alone we are all here to help and chat to you at anytime.
Ian
By clicking on the green text above will open up new pages for you allowing to join the T-cell lymphomas forum and Stem cell transplants for blood cancer forum groups and start a discussion. I think you would benefit greatly by speaking to others who have been in the same position as your daughter.
Thehighlander would you please keep an eye open for making her way over to you and give her your usual helpful support, thanks.
Edited by The BODACH 7/11.
I have edited my previous post with some alternative information that I think you will benefit from.
I hope that you will join both the groups and speak to others who might be able to help you.
Ian
Hi I am in a similar situation. Our son who is 25 was diagnosed with acute lymphoblastic leukaemia on 25 August this year it's a date seated on to my brain. We are also heading towards a bone marrow transplant. Our daughter is a match. We had our transplant meeting today with our daughter it was very emotional to say the least .
I am sure I have read that if a stem cell transplant fails they are able to carry out another one. Have you asked this question.
I feel your pain it's like being in a nightmare. I am so afraid to feel positive even though 5 weeks ago he is in remission but it will come back without a transplant.
Please feel free to message me. Sending you hugs
Hayley x
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