Well in the last few days I ve been on a bit of a rollercoaster - been comforted and helped by some wonderful nurses and carers and also then been on dips where I want to get in my car and drive away as far as I can from all this crap that's going on with my Dad . Pretend it's not happening and not have deal with it. Fortunately I think been more on a straight course than anything else. I've let go to a fabulous nurse on my dads ward how crap I feel and shes went above and beyond to help us, seeing Macmillan nurse tomorrow. This nurse on my dads ward and Macmillan nurse have fought my Dads corner to facilitate adequate pain relief and support to us x I cant say that I'm still not hurting but its less so in some ways because I know I'm not alone x I appreciate all the support from Macmillan and other people on this page xx
Hi, I'm sorry you are having such a rough time. When my Dad was in hospital I was so concerned he wasn't getting the right level of care for his needs. The nurses are so busy and I also thought they didn't treat him as a whole person with complex needs, he has a brain tumour and that causes its own issues besides the ones he was admitted for. My hospital didn't have a Macmillan nurse, I wished it did. I've spoken to them on the phone just yesterday as I was struggling with coordinating Dad's care with different agencies they were brilliant.
I do hope you find the support you need, it's so very tough and I feel for you.
Take care x
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