Hi all, I'm never used online forums before, this is all new to me. I think I just need a space to get my feelings out. My husband was diagnosed with metastatic melanoma in 2016, he had a tumour removed from his groin followed by radiotherapy. In 2014 he had a biopsy on his toe and was told it was not cancerous, this was incorrect and the cancer spread up his leg to his groin where the tumour developed. As a result of the removal of lymph nodes, he has lymphodema in his right leg. He's then had regular check ups every 3 months and everything was fine until May of this year when a black mark reappeared in his toe. He had surgery to remove all the cancerous cells and has recovered well from the procedure. His last CT scan detected a mark on his pancreas and in August he had a further PET CT scan to investigate further, 4 weeks later he had an endoscopy on his pancreas. We chased up results, but none were forthcoming other than to book in for a blood test for diabetes last week as his blood sugar was a little high. For a week he's been poorly, not eating or sleeping, with pain in his torso, he had the blood test on Wednesday, we also saw the gp who gave him some antacid and cocodemol, thursday he got the results and told he'd developed type 2 diabetes, friday we saw the dr again as he was still suffering and he admitted him to hospital. I've never seen NHS staff move so quickly, we were told his ketone levels were massively above a safe level and he was in a life threatening situation, they had him hooked up to insulin and fluids within half an hour of our arrival and by the morning, he was back at a safe level. A diabetes specialist came to see him and said it was Type 1 diabetes and that his pancreas had just stopped producing insulin. He then went on to apologise for being the one to deliver the news, but that the melanoma had spread to his pancreas and that he was aware he hadn't been told by his consultant, but he felt he was owed all the facts. We're seeing his oncologist on 12th Nov and apparently were going to get all the test results then. We're now trying to come to terms with the melanoma being back and diabetes. My emotions are all over the place, I'm sad, angry and confused, I don't know why they waited so long to tell us. We've got 4 children, 16, 14, 12 years old who I had with a previous partner and a 5 year old who we have together and I'm desperately trying to hold everything together for them. People keep telling me how well I'm coping and I'm amazing and I want to scream at them and tell them I'm not coping. I cry pretty much every time I'm alone, it takes every ounce of strength I have to complete simple tasks like making dinner or sorting washing out. He's still in hospital and due out tomorrow, I can't wait to have him home but I'm terrified of the next steps we have to take.
Hi there, my partner has pancreatic cancer and a few months later he had a mole which changed and was cancerous. The genetic team have been in contact as apparently these cancers can occur together. I understand how you feel, that things are exhausting physically and mentally, I find I have lost my confidence and find simple tasks a gigantic struggle. I hope that when he comes home you will feel more settled and are able to take the next steps together. One thing I wish we had done was to write everything down along with the dates. It's surprising how quickly you forget the order in which things happen and when jot down any questions and answers you get straight away. I used to think I could remember things but my mind and concentration has turned to mush. Please let us know how you get on Pam x
Thank you for your reply. I find the same with my mind, I forgot my son's school trip recently and sent him to school in uniform instead of mufti, luckily we live close and could run home to change him quickly. But it was enough to make me have a complete breakdown as soon as I got back inside my house and away from school and all the other parents. My husband loves to write and started a blog after his initial diagnosis, he finds it very therapeutic to get everything out of his head, so we have a kind of record of events. We're seeing his oncologist on the 12th Nov and have already started to compose a list of questions for that before the next stage of treatment. I keep an exercise book that I write to do lists in, sometimes I write little tasks like make the bed or unload the dishwasher, just so I can tick a few things off and feel like I've achieved something even if the bigger things I've not managed to do. How is your husband? x
Hi there, thank you for asking. My partner isn't very well at the moment. He had surgery last November but refused follow up chemo and now we find the cancer has returned. He is not having any treatment. Part of me is upset and so sad for him, another part of me feels anger that he's so stubborn and difficult at times. I feel totally mixed up. Sometimes I have mini meltdowns when I have difficulty getting his repeat medication, I have told my boss to go away in the rudest terms. I am taking a break for now as I felt he needed me at home, sometimes I think it was a wrong decision as I could scream, but how would I feel if I came home and found him lying at the bottom of the stairs?. I feel we may not be in this position if we had taken the chemo, but it's too late now. Everyone is different in how they respond to treatments so don't let my story discourage you, your husband sounds as though he is doing everything right
I'm so sorry to hear that. I understand the mixed emotions, I'm so upset and sad, but then he gets in a bad mood and I get annoyed with him, then feel guilty for being annoyed because he's ill. I have to remind myself that it's ok to get annoyed and angry with him at times, because first and foremost he's my husband and not just a cancer patient. Do you have anyone else that can step in and care for him so you can take a break? It's really important you take care of yourself as well, I'm really bad at looking after myself and asking for help, but I'm slowly understanding that I can't take care of others if my own mental and physical health is declining. I was supposed to being having a short break with my sisters this weekend and I feel awful about going, but he's quite insistent that I need it for my own self care and is going to stay at his parent's house with our youngest son. I'm still in two minds about going though. x
You go and enjoy yourself .I recently had a,spa break with my daughter it was lovely .Bill wasnt too bad then my son came up from Weston where he lives and took him out for a meal .This was only a few weeks ago now he is hardly eating and spending most of the day in bed .You really need to take your chances when you can .Although it can be hard making time for yourself it is vital this is a long and arduous journey we are on with many twists and turns along the way .He will be fine at his parents and he wants you to go dont feel guilty and have an amazing time lots of hugs xx
Granny Sue
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