Feeling it today

FormerMember
FormerMember
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Hi,

I have not posted here before, but am feeling the pressure today.

My father had a diagnosis of terminal throat cancer in May 2019 and since then my life has been turned upside down. My dad nor my step mum drive so I have been driving them back and fore to different hospitals since then for appointment and he decided to have palliative radiotherapy once a week for six weeks so I drove them every Tuesday the 120 mile round trip. I work full time have two teenage children and a husband who works away at sea. I do have an understanding employer and was able to take time off to take him to hospital all through the summer holidays. 

Dad managed the radiotherapy well, but nearly six weeks ago they said he needed tracheotomy and went in to have it done he bled out in the night and I got called in at 5am they said they could do no more for him and stopped his meds fluid etc and put in the syringe driver. He refused to stay in hospital and said he wanted to go home, which we arranged, we didn’t think he would make the weekend. Anyway nearly six weeks later I am still at his house supporting my step mum care for him, not been to work and didn’t even come home to see my own family for the first two weeks. So as it is half term want to be at home with my kids, and I’m finding it so hard. My life has literally been turned upside down, my son shouts at me tonight “you’re not even here half the time” this has just pushed me over the edge. I want to be at home more than anything but I also need to be with my Dad. My Grandad also has terminal cancer and my Nan has been in hospital (both my Dads parents) and they live 150 miles away in Manchester I also need to see them, and they want to see him, but none of them are able to travel the distance to see each other.  Sorry for the long post, but I just needed to get this off my chest, and talk to others who may be in the same position.

  • FormerMember
    FormerMember

    Hi there, no wonder you are feeling the pressure, what an impossible situation you find yourself in. I am just wondering if you can get help in the way of carers to help your stepmum care for your dad while you get a break and maybe go home to see your children. When I say break I fully realise that you have to get there and then deal with everything and everyone at home. Would you be able to perhaps take your children to see your nan and grandad so that you are spending time with them all.? Is it possible to Skype  if you do visit nan and grandad so that your dad can see and talk to them, not ideal or easy I know.

    I hope that just writing everything down has helped a little and I'm sure others will have fantastic advice. Give macmillan a phone call for advice and speak to your Gp to see if they have suggestions. One thing for sure is that you have to take care of yourself, you are doing an amazing job in hugely difficult circumstances. You are only human, please don't feel as though you are anything less than a hero xxx