Bill has another scan tomorrow M.R.i brain his expressive disphasia has got worse so we can only assume that something is going on with his brain .As his general health isnt so good and to be honest he has had enough we have decided that he wont have any more scans after tommorrow .We are also going to stop the Oncology appointments after the one in November .We will just be under the community teams and G.P .He hates the scans now and as he dosent want any more treatment its pointless .Its quite scary but also kind of liberating I think he will do better if he dosent have to keep going on the same merry go round .Best scenario tommorrow is if the scan hasnt changed worse the tumour is back and spreading but at this stage its one and the same .Still find it hard to believe we are at this point but there you .I think he is very scared and dosent kniw how to cope with it all Its going to be very hard now for borh of us A day at a time .lots of hugs xx
Dear Granny Sue I'm sorry to read that you and your husband are at the end of treatment, scans and oncology appointments stage on your cancer journey together. My husband too hates the scans and like you describe the merry go round of scans and the oncology appointments to see has it grown, is it still the same. I hope his last scan scan gives you the best possible outcome of its still the same. What a brave man but no doubt scared man at the same time. Best wishes to you both and yes a day at a time x
Thank you Sunflowers he has just gone to the hospital with our daughter and I took my twin grandsons to school .Poor Bill looked like a man going to an execution today .Half the problem is his veins they struggle to get the cannula in and its painful for him . I would just like to say thank you to all of you on here for the kindness you have shown me over the last 3 and a half years truly believe I would have gone mad without it .I will keep posting and hopefully will be a carer for Bill for a good while yet .Lots of hugs xx
Granny Sue
Hi granny sue, you write so well I can so understand why you have made the decisions. I do hope that the scan is as good as it can be and you can wave farewell to the endless rounds of hospital visits. You have a community team and GP for support so hopefully you will have less travelling and fewer appointments. It is scary, Ken says he doesn't want to know what and when things may happen. The palliative care doctor said they have no more plans for scans for him and will just treat him as necessary. My world is shrinking and every bad thing in my life keeps popping into my head. One day at a time though as you say. Together we are stronger. Much love Pam xxx
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