My partner of 25 years has recently been diagnosed with stage 4 bladder cancer and we have been told that the cancer is incurable. 10 weeks ago he was playing golf and we were having caravan holidays now it seems like a nightmare.
He is so poorly, he lost 3 stone in 8 weeks and looks emaciated. He is very fatigued so sleeps a lot. When he is awake he can be confused or agitated. The worse thing is the bladder tumour has grown out of the bladder and is pushing into the rectum giving him bowel incontinence. It is breaking my heart seeing him so weak, ill and vulnerable.
We were told he has 6 to 12 months to live, but I am so scared he will not even live that long as he is deteriorating every day.
I am so sorry that you've joined us and to hear of your partners condition it's always a shock when this happens so quickly and there is nothing you can do about it.
We the Mac family are here at all times to give you support and help whenever you need it and that includes listening to you having a rant and a rave or better still to do what we all do and let off steam we may not understand how you are feeling but we do appreciate the effect it is having on your life.
I would like to suggest that you join our Supporting someone with incurable cancer forum group and introduce yourself to the members who are in the same position as you and are very friendly and supportive to each other and will share their experiences with you
As this is a major change to your circumstances and something you could not imagine happening to you, I would to ask if you're being supported in the community and receiving any benefits that you maybe entitled to, we have a team of financial experts available to who can advise on many things to do with the effects of cancer and how to claim them don't be shy if you think you could do with some extra help let me know and I will introduce you the experts
Anything you need to ask give me a shout out I am normally always about and if I don't know the answer I know a man and woman who will.
I am going to ask you to do something for me and that is ensure that you look after YOURSELF, being a carer is not easy it is very hard and exhausting role and you should when your partner is having is having a sleep take the opportunity to have some ME time, sitting in another room with a coffee and a book for half an hour will do you the world of good and in the evening relax with a glass of grapes. If you are able to have someone to sit with your partner for a few hours every so often take the opportunity to get away from the home, have a coffee with the girls or do some retail therapy and don't feel guilty you'll be amazed how these little breaks will help you to continue caring for your partner and it is important that you do think ME at some time
Please keep in touch with us, you're part of the Mac family now and we want to be your support plus we want to know that you are okay and of course how your partner is doing
If you care to introduce yourself to the Bladder cancer forum group my friend rily will be available to give you his support
But please do keep in touch with us all
Ian
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007