Long term chemotherapy side effects

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Good morning all

I am struggling with (worst first thing, but also after sitting or being inactive for a bit) finger, wrist, elbow, heel and ankle pain and achy stiff hips.  A few of my fingers too have that trigger finger issue first thing.   I had chemo ending June 2024 for HER2 positive breast cancer, then surgery and radiotherapy.  I am on Letrozole now (another 3-4 years to go) and 1 year left of my bone infusions and am in remission now.  

However, this pain is starting to get to me.  I struggle with fatigue too but it is on and off and not to the same degree.  

I wondered if anyone else struggles with this so long after treatment.  I wonder too if it may be the Letrozole too.  I do keep moving and thankfully have my dogs which ensure I do.   I do take some pain meds and am trying things like collogen now to see if that may help too.  

Not sure if anyone may struggle with this too and if they have tried something that may help ease it too?

Thank you Slight smile

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community, and although I've had breast cancer I haven't had the same side effects as you.

    The online community is divided into different support groups so I'm going to recommend that you also join and post in the breast cancer group as you'll then connect directly with others who have the same type of cancer and treatment as you. 

    To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi  

    Thank you for your message and welcome Slight smile  I have added to the breast cancer forum and my profile.  With my thanks again and very best wishes.