Immunotherapy ( keytruda)

I have never had this drug but have had over 800hrs of chemo over a 2 year period as well as other treatments for my 2 types of T-Cell Non Hodgkin’s Lymphomas…… and I certainly had problems with my legs and eventually ended up in a wheelchair for a few months post my last treatment and had to have physiotherapy to get me back walking again.

The problem with these strong treatments is our muscle mass, especially in our legs can get melted away……. combine this with being less active…… that can also result in the loss of muscle, aches and pains…… trouble walking can happen.

Hi Mike,

Thank you. His ankles are very swollen & I know how long & how much it took for him to get mobile after the stroke. 

He had a check up call today from Marsden & was offered physio, as he is already registered with them & also said the lower back radiotherapy could also be causing this as well. But as with everything help wise he declined offer & says his legs/walking will go back to normal when ready. I personally think he should take some physio help now, even if its just to get him out the flat, but no. He wont do it. He says " hes doing it his way".

Hes starting water retention medd tomoz to see if they help with the swelling.

Wait & see & hope for the best.

Thanks for reply & hope you're well

I am great…… 9 years 7 months out from my last treatment, I turn 70 at the end of the year and I am living a great life.

Honestly…..  he is being a typical pig headed, I know better than a medical professional man…. 

The longer he puts of getting the help that is available, the longer he will be in pain and the longer it will take until he gets back to living as normal a life he can achieve ((hugs))

My words exactly!

I wish his oncologist or lung nurse would say that! But they said sadly we cant make him do anything.

Unfortunately hes oblivious to stress this is putting me under.

Glad to hear alls good with you, take care x