Hello,
I'm new here, first post, so sorry if this is in the wrong section.
I've recently been diagnosed with Testicular cancer. Had an ultrasound on 13th of September which confirmed it, followed by a ct scan the next week or so that didn't pick up any spread.
Since then I've met four times with the hospital pre surgery team, anaesthetist and surgeon, regarding my orchidectomy but I still don't have a date.
I rang my key worker last week and was told I'm on the waiting list and I've heard nothing since.
It'll be 2 months since my ultrasound soon and I'm getting worried about it spreading in the meantime. Am I being stupid and should I just wait?
They keep telling me it's really curable and citing lance armstrong, but he had a tin of treatment including brain surgery and i don't relish any of that.
I also read that untreated it's 100% fatal in 6 months to 2 years. So that hasn't helped my mood.
Any advice welcome.
Sorry to whinge on.
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear that you have been diagnosed with Testicular Cancer.
A cancer diagnosis can bring a lot of stress, confusion and questions on but talking with people who are on the same journey can help a lot.
With regards to not hearing what is going on you do need token putting your foot into the system so that you don't fall through the system.
Can I direct you to this link to our very supportive Testicular cancer group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.
Just follow the link above, hitting ‘Join the Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
All the very best.
