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Hi Lynda, 

Welcome back, and oh my, what photos! Stunning! Thank you for the mince pie.....

Helen, thanks so much for your expertise, I've boosted my own multivits and minerals accordingly too. Have passed on to daughter but as yet I'm not even sure she has her neck MRI results. 

Mark, hope Helen's expertise is helping you too....

Hugs to you all xxx

You are welcome moomy.  Not sure Mark is ready yet, but really hoping he gets there.

Just popped in to wish all the best Christmas & New Year posssible

xx

And the same to you, sweetheart.  Hope things are picking up for you.

And wishing you the best Christmas and happy new year possible, Carol.....and everyone else too of course!

Hugs xxx

Happy Christmas everyone. This year is better than last but still a little sad xxx

Hello again, everyone...
 
wishing everyone here a great time over Christmas, whatever your doing, and however you celibrate.
 having a very quiet one here, - a little sad for me, as this time  last year I was still well enough, only a few months after cancer treatment, to be able to fly away on my own, for Christmas, to Sweden. - A year on the endocrine treatments are still making me weaker each day and now I don't think I could even travel far enough within the UK to visit my family anymore.

i did get some progress with my lousy hospital though; the letter threatening them with legal action, just happened to coincide with them doing a lot of things I'd previously been promised; I got a very  detailed lengthy letter from the consultant to me and my GP, detailing a plan of action, for what they are to do. They finally agreed to tell me my thyroid levels; and then the GH nurse got in contact to say I can now start the growth hormone I've had in my fridge since October (specialist GH nurse coming on the 20th to teach me to self-inject it). Plus, I've got a heart ultrasound, (echiocardiogram?) on the 16 January, and am waiting for the bone density scan appointment, now they've finally decided I can have one, albeit nearly two years too late.
Got some progress with my GP again too; just awaiting appointment for dietition referal and she's written to oncology to try get my oedema investigated, to rule out its being lymphodema.
I've gone back on to melatonin to try sleep more than one night a week, and the GP also scripted me some proton-pump inhibitor tablets (ant-acids basically), which have, astonishingly made a massive differnce, from the first one I took; curing several things. The GP was suprised the hospital hadn't put me on them since the day I started the prednisolone, as it badly affects the stomach etc., so effectively.

The hospital are still refusing to treat any symptoms/side effects though, until I've got some way into the growth hormoen trial, so hopefully at some point I can get things like my reverse reaction to levothyroxin and steroids addressed, plus get my oedema treated  before I get long term kidney dammage and heart disease. - They're a bit mor reluctant to believe me as regards qualitive and quantifiable changes  in my bodys reaction to the replacement testosterone, but I think I should be able to beg the nurses on the 23rd December, to do an extra blood draw to check soemthing for me, as I'm relatively convinced I've regained the ability to produce my own testosterone. - A blood test would confirm it though, - so perhaps I might not need the IM testosterone injections forever afterall...

So, I've now got to stick to the hospital for the next eight months, to complete the growth hormone trial, at least, and hoping that can fix many things if I'm lucky, and in the new year, if I can just regain a little strength and energy I'm going to start exercise, if I can find somewhere local that will help me as a blind person to do so.- Maybe the gym near where I live as a start... - and attempt reducing my food intake further (already eating 1/3 of what my normal diet was, but with no weight loss (at least I'm vaguely staying the same weight now!).

Just trying to stay optamistic that things may  improve, before I get so bad it'd be an even harder or impossible struggle to return to anything like I once was.

Hope everyone is doing OK- feel free to eat my share of Christmas over-indulgence!- I've still no idea what we're cooking for Christmas, but it certainly won't be the over the top food festavil it normall is!

 

Unknown said:

Just popped in to wish all the best Christmas & New Year posssible

xx

Happy Christmas and Happy Boxing Day! 

I've left some mince pies, there might be some Baklava too if daughter doesn't eat it first! There's also mulled cider, please help yourselves. I see the faeries have kept the wood burner going, that's great as its a bit chilly tonight! 

Hugs to you all xxx

Hi  Moomy and everyone.

i hope you had a good Christmas and New Year.

the build up with the Grandchildren was lovely especially the Christingle service on Christmas Eve. Christmas Day was very hard and the tears flowed but all in all it was OK.

Happy New Year to everyone I hope it is the best possible for you all 

i am going away for a week today, no turkey left here I,was very careful this year and only bought what we needed!

.

Love and hugs