24/7

Lynda what a wonderful Christmas present for you.

I am so happy you have been reunited with him and better still you now know he is safe and well.

Tou will soon get him plump again.

Love and purrs xxx

So sorry you have a sore throat Jasmine.

You may be wise to go to the doctors there is a nasty throat infection doing the rounds.

Lots of lemon and honey and rest!

Hugs to you my lovely xxx

Thank you Christine,  I am just worried that I will pass something nasty to Mick, he really is quite fragile at the moment and very down, totally understandable, I think he is in discomfort as well but he won't say.  

How are you?  You are a great support to everyone, dont forget to look after yourself.

Love and hugs Jasmin xx.

Lynda! great news he's finally returned! - What a fabulus thing to happen, just before Christmas too!



sorry I've not posted in ages, just been kind of busy with various things...  Spent this morning at hospital; bloods which I didn't even know needed doing (we'd not recieved a letter), and then my testosterone injection that I was expecting, followed by having my port flushed...

Was chatting to endocrin nurse who's as confused as I am with my strange response to hydrocortisone, and how I'm feeling better, for having reduced my dose down, so low, that theoretically its not even at a physiologically active level. Also queeried with nurse why my results show I've got hypothyroidism, yet the Dr and Prof deny that every time I've asked, she was even more confused... At least my untreated hypothyroiditis   for the past year, all over the duration of  my chemotherapy, goes some way to explain my gaining so  much weight, and, actually, oddly, all the various endocrine 'bits' together, now expain every side affect I have from chemo, as being nothing to do with the chemo at all (well cept maybe for the neuropathy).

New year is going to be endless struggle with the hospital I fear, this time for endocrinology not oncology.

Almost packed  my bag for flying away, Wednesday morning! - not yet decided if I'll bother sleeping before flying as it stands I'd have to get up at 4 AM, to give time to breakfast, get to the airport etc, which is only a couple hours after my useual bedtime! Well, see how tied I am after the pub tomorrow night..

I'm sure I've fogotten to pack something!;  have it all in one carry-on  hand luggage bag, which only weighs about 14 LB (apparently allowed up to 50 Lb (20 KG))...

Hope everyone is OK and has a fabulus Christmas, I probably won't be back online now, again, until something like the 12th, Jan, after I get back from Sweden

Hugs to all

To all struggling with this nasty throat/head cold/cough bug, please don't suffer, especially if it hits your sinuses, or the cough spasms are great, you will need to see a doctor, maybe for antibiotic, maybe steroid tablets. I really hope you improve very soon, Lynda, Helen, Jasmin, ( and your Mick too) Carol and anyone else who is struggling in silence. 

Mark, enjoy your break. 

Jakki, stay safe and enjoy the skiing.... Hope to see photos! 

Keith, I've posted to you and had a reply, too, bless you.....take care of yourself. 

Big hugs to you all.....more mulled wine gently warming.....

xxx

My cough is lingering and I am bringing up yucky phlegm every so often (TMI, sorry!) 

I have sent you a friend request,  Mark, as I think I might be able to help somewhat with the thyroid problems, especially having now read your profile.  

mistymoley- thanks, friendship request accepted!

- I'm complicated pathology wise, and, to be hoenst the cancer is just the latest complicating factor in everything! - all my endocrine problems are seemingly linked back to my head trauma (which blinded me), in 1993, and the related, belated, brain hemorridge in 1994, (which did in my other eye!), - recent MRI showed a long-term, stable looking infiltration of my sphegmoid sinus by 'fluid', thought to   be related to that hemorridge on my left side of my brain (OK, so actually it was a fistula of the carotted artery, that bled into the extra-vascular space, to be pedantic...) - anyhow,  this MRI shows 'indistinct' Pituitary gland, and is assumed the swollen sphegmoid sinus has put pressure onto the pituitary and wrecked it; due to which I'm missing Adreno-corticotropic  hormone (ACTH); responsible for my missing cortisole (hence secondary Addison's disease), and also for messing with  my FSH and LH levels (hence I'm on testosterone injections), and, one assumes this may also mean the pituitary isn't making enough thyroid stimulating hormone, hence the thyroid problem; to complicate matters, I had radiotherapy this July for the lymphoma, and the node in  my collar bone nearest my neck may mean my thyroid got a dose of radiation; of course a combination of both those may be responsible!

The lymphoma isn't related to my head trauma as far as I know (family has strong genetic link to leukemia which probably explains that).

confusing bit, is, the endocrine problems could have occured any time since 1993 or 1994, and may have indeed been building up over that period; yet only matterialised the night before my lymphoma staging PET scan, when I had a seizure/fit - possibly a hemoridge the Drs seem vague, which has, at various times, been put down to; Addisonian crisis, sodium salt unbalance (possible SIADH (syndrome of inappropiate antidirectic hormone secretion; formally known as diabetes insipitus- more recently endocrine prof rules out my having this, which I'm.... scepticle of TBH...). - of note on the lost discharge letter from that seizure and stay in hospital, said hemoridge was cause; but in same letter said brain hemoridge  was not the cause. On same, lost hospital letter, it said there's a 'area' on one sid eof my brain that could be lymphoma; no doctor will answer my questions regarding that, rather annoyingly. - I assume more recent CT and PET scans for the lymphoma, which put me in remission, are ruling out the very rare brain lymphoma. - on that scan, the area in which they thought  might have lymphoma is basically all scar tissue anyhow, so I guess just tricky to make much out!

Ahh. what a joy to have interesting pathologies.!

err... hope I wrote that lot, vaguely correctly/understandably!

May not be posting again now, until I return from Sweden, I really must go pack! - Just in the nic of time,  my new debit card has arrived at last, whilst I was typing this!

Love & hugs to all

xx

Christmas hugs to each and every one of you 

xxxxx

Hello everyone.  Just want to wish you all a peaceful Xmas, and to thank you for your support and friendship over this last year.  Best wishes and love to all Jasmin xx