Living alone with cancer

Hi everyone.

My daughter was mis diagnosed by her GP and a gynaecologist, she unfortunately has alveolar rhabdomyosarcoma which is terminal, she's 30 yrs old and has 2 children, I'm trying to support her but I'm struggling. My dad also has terminal rare cancer.

Why does life have to be so tough onthe good ones

Hello Lisa.H 

A warm welcome to the Macmillan Online Community, although I am so sorry to find you joining us. I am Brian one of the Community Champions here on the Community.

The Community is divided up into various specific groups and there are two groups I would advise you to join, here are the links:

Supporting someone with incurable cancer forum and

Carers only forum 

Once you click on the links I have provided and the page opens up, click on "join" at the bottom of the page, Once you have joined each group, why not introduce yourself in the "New Here- Say Hello" section - I can assure you of plenty of help and support.

You are more than welcome to call our Support Line for help and support on 0808 808 00 00 (8am to 8pm 7 days a week) I am sure they can help you too.

If you need any further help in navigating the Community, please do get back to me.

Best wishes - Brian.

Hi, I live alone and was diagnosed recently. I have some really good friends but the hardest time for me is when I get home and there is no-one there to talk too or just hold me and take away everything and tell me it will all be ok. 

Adverts or a mention of cancer makes me cry. I feel even more alone now that I have cancer. 

Hello. I agree that having no one you can gain reassurance from can be challenging at times. Like you I get upset at seeing photos of patients in hospital. Having a friend you can message may help. Lots of us are alone and maybe find other online forums for your specific cancer, or local social groups. 

I do have some great friends but I feel like a burden to them as they have their own lifes. I have looked for a forum of my cancer but can find one as its so rare. 

I quite agree with you. I don't want to burden my friends either. Is your cancer a main part of the anatomy? You can see if there are local meet ups too. There are a few charities that have social meet ups. 

I've just found Cancer research uk forum you can join as well as this one. I hope it helps. I get very lonely too and, in my head! I need to be with other people to gain a better perspective so I'm trying to join more clubs and volunteering etc. I hope I've helped. 

Hello Gill (Gill23 ) 

Welcome to the Community although I am so sorry to find you joining us.

Our Community is divided up into cancer specific groups - if you let me know what type of cancer you have I can direct you to that group where you can "meet" people on the same or similar journey.

Best wishes - Brian.

Thank you 

Hi Brian, 

Thank you. I have urachal cancer. I would love to be able to talk to anyone who has had this cancer.