Insomnia is driving me crazy! Anyone else?!

Hi heartonmysleeve44 and welcome to the cancer chat group.

I’m hoping you’ve managed to get some sleep now, but I just wanted to tell you about a special thread we have in the group for chatting to others who are also having problems sleeping. This is the link

Awake and up all night

This is usually a very active thread for any night owls to chat about anything and everything and you’ll often find others there who are in the same boat. Please feel free to join in, and you’ll find some lovely folk there who will be happy to meet you. We chat there at all times, during the day and night, so I hope you’ll join in whenever you’d like to. 

I’ve seen you post in the womb group-I’m a member of that group because of my own circumstances, although my cancer was cervical - and I was sorry to read of the situation you find yourself in. The ladies there will I’m sure want to offer you their support, and there are particular threads in that group where others discuss being on chemo and immunotherapy which I’m sure my fellow community champion Jane in the womb group will direct you to when she sees your post there.

In addition to this, we have another group you might find it helpful to join which is here

Living with incurable cancer Forum

This is a special safe space for those with an incurable diagnosis, for patients only, who will understand the particular challenges of living with the disease. You need to request to join it when you click on the link, and the Macmillan admin team will action your request for you. 

I hope you’ll find it helpful to be part of the Macmillan community now you’ve found us-you find lots of support here, and hopefully some new friends who will understand. You are very welcome to be with us.

Sarah xx

Can sympathise totally as I too suffer with insomnia although not diagnosed.

Hi am recently diagnosed with incurable lung cancer.  Even before my diagnosis, I had trouble sleeping, now it feels worse.

1. I am going through the same, not sleeping well, waking after very little sleep unable to drop off again...like yourself it's driving me insane.

Me too exhausted but also in pain as pain killers only work for 3/4 hours 

I finished my chemo for colon cancer a year ago , I’ve had insomnia ever since, I’ve had sleeping pills, melatonin tablets, none of them worked as they should on me, I don’t have feelings of tiredness, I lay awake most nights till 3.30 sometimes 5am then I must just black out, I may wake up at around 8.30 am , I feel exhausted but not tired,I feel for you .

Recently diagnosed with stage4 endometrial cancer. Can’t get out of my mind that I should’ve requested scan at an appt two years ago - regret it so much I can’t think of anything else! 

I would try not blame yourself for something you body has decided to grow. I have tried not think about if went to the doctors 6 months earlier would I have been a different stage instead. Would that mean I would have not needed a full kidney removal, major surgery and now going to start immunotherapy in 2 weeks.

Its easy to try and find a reason or something to blame for why we have this very difficult illness. A scan 2 years ago might not have shown anything or it might have. I would try not to think back (easy said) of why or if but use the energy towards the next steps and the options given by your clinical team. 

Sending you a supportive hug. 

Hi Patron and welcome to the Macmillan community.

I see it’s your first post with us, and I’m sorry to read of your diagnosis. You might find it helpful to join our womb cancer group, where you can meet other ladies who have been or are going through the same type of cancer and treatments, so if you’d like to do this, the link is here

Womb Cancer Forum

 Just click on the link I’ve made and you’ll see a black banner going across the page which you just need to click on to join the group. You could then make a post to introduce yourself-the ladies there are lovely and very supportive. 

I had a different cancer, but I did wait a long time before going to the doctor for investigations. I used to think sometimes in the early days after my diagnosis that I should have gone sooner, that things might have been different, but I’ve learned not to think like that now.

it might have changed things, it might not have, but I try not live with regrets or the “what if” questions because there will never be any answers. I hope you’ll find the womb cancer group a welcoming group, where you can share your feelings and chat with others who will understand what you are going through.

Sarah xx