Awake and up all night

  • 21488 replies
  • 467 subscribers
  • 1108239 views

Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • No problem-p Gill-good idea to contact your gp for a chat. I’m sure they could help. And we don’t know what help is there till we ask! I forgot I also got these stackable steps because I couldn’t get into the shower. They might help for getting into the bath too.

    We bit the bullet this year and got our shower replaced with a walk in shower and got two grab rails put in there too. I hardly ever use the bath as it’s too scary for me! I need help from OH-sitting on the edge of the bath and then getting help lifting my legs up and over. What a performance it is, and very difficult to get out of it-I get what you mean about grabbing hands and not feeling safe! 

    Sarah xx

    Ps. I have already fallen asleep 3 times since late afternoon but wide awake now! Joy


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hope you sleep, Soc-night night and a cuddle from me and Nyx.

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Aw Soc will love the cuddle from Nyx

    Yes, I'll definitely ring the GP next week and explain the difficulties with safety. It's every time I help him with bathing and know it's only a matter of time before he comes a cropper.

    Thanks again Sarah, for bringing it to my attention, so that's on the cards now. Unfortunately our surgery is closed at weekends else I'd ring tomorrow.

    Anyway my lovely, as I said to Soc, I'm going to have an early night so I'm not too jiggered for a yapping session with my daughter tomorrow. If you're wide awake, maybe Ray or Dingg or other night owls will be around for a natter.

    Night night love, and sleep well when you drop off xxx

  • Get a good sleep for that yapping session Gill! I’ve had my pills so might just conk out again with no warning!

    I hope you can get something sorted for hubby-they were falling over themselves to get me help after my stroke, and I must say it was brilliant-I was very grateful because I felt really vulnerable.

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Sorry you've had knee trouble Gill.

    Me too, l find Voltarol rubbed either side of knee caps is good.

    Xx

  • Yes thanks Gill

    I've had a rough few days. I had a scary panic attack last night, its all the stress, l was shaking, cold, face red hot and panicking. 

    After about 40 mins it eased off.

    All day training at hospital to set up feeding tubes,  use of medication and maintaining the pump machine. There wasn't time to eat. 

    Hubby isn't that well he almost couldn't have chemo today as his white cell count was low. He's had 16 pints out of his stomach and its either the cancer triggering something or the liver under pressure, tests being done.

    Doc said if he's not well enough he wont be able to come home next week if he needs constantly to be drained, blood transfusions and his blood sugar is 27 due to the feeding tube. 

    Some suggestions were that the cancer maybe just maintained if the throat doesn't open.

    The next 4 weeks will tell if he's turning the corner they said

    I feel shaken by some of the things they said but am having herbal tea in bed and hope to get some sleep xx

  • Hope so, but reading my post to Gill, been a difficult few days

    Hope you are ok xxxx sending hugs x

  • Looks quiet and spacious,  hopefully comfortable bed.

    Sending you healing wishes xx

  • Morning Dingg Hugging 

    So sorry to hear about your news my love, but believe me it's best that hubby remains in hospital until he's fully well enough to come home. The disappointment is intense, I know as the same thing happened with OH on three occasions, but putting myself in your shoes now, rather he stays there than comes home and has to go back should any complications arise that you're not trained to deal with.

    Sweetheart, the panic attack is totally understandable, what with all you're going through, but using a very old remedy could help if it happens again. I had one in the early days - heart racing, gasping for breath, shaking, but grabbed a paper bag, put it over my nose and mouth and breathed into it. Within a minute I'd fully calmed down and was ok. I really hope you don't have another, but it's worth having a paper bag handy and using the method. Fingers crossed you won't need it.

    I'd like to thank you for your advice about the Volterol - I've got some in the house but through neglect, or sheer stupidity, forgot to use it regularly. I'll go back to it quick smart!

    Dingg love, you're in my thoughts a lot with what you're both going through as it's a reminder of our awful experience, but hang in there sweetheart. Sending you both love and strength from OH and myself xxxxx

  • Hi Gill

    I've been researching mobility aids for Alan's Dad and his Council run the scheme, you book an Occupational Health appointment through them. Check out your council as you may be able to get the ball rolling today by booking online.

    H