Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hello everyone. 
    I am so sorry to read what some of you have been through, and for some, continue to go through. It’s heartbreaking. 
    You are all so inspirational, with your lovely words and the great support on here for each other. xx

  • HI Gill H,
    Managed to get some sleep from about 5am til 9am

    I've had am email message back form the SARS Team, they are going to send a new download link. FIngers crossed this one fully downloads and can be unzipped. As I realy what to see the results of my colorectal CT &MRI as well as my full body PET-CT, before this next Chest CT I am about to have to look at the hot spot in my lung.

    I was a night owl before this journey started. Now of course i am very self-aware that the rumination fo my current situation will tend to make me even MORE nocturnal !!!

  • Hi again Joolz Wave

    You just pipped me in the sleep stakes as I got around 3 hours, so good work!

    That's great news about the new link, and fingers crossed it opens this time so you can get access to your scans results. Here's your complementary night owl badge Owl I'd say wear it with pride, but I'd rather you start getting some quality sleep.

    The very best of luck for your upcoming CT scan fella xxx

  • Hi Joolz

    Sorry you've had to join us here and good luck with the scan.

    I have been a night owl for a long time but it's changed since I had cancer because of treatment side effects, last night I had to sit up for an hour because of flippin' indigestion!

    H 

  • Sorry to hear that

    My cancer is colorectal
    Excise op was 18 days ago
    I was initially up at 3am every night in pain and needing the loo
    At least I am beyond that now

    But getting the pathology/histology result yesterday afternoon just put me into a rumination headspin night [not unsurprisingly]

    BUT very concious that I need to do my best to get enough sleep each 24 hours

  • Ta,

    Just waiting to hear about the chest CT appointment . . . for 'them' to review exactly what they 'think' that 'hot spot' on my lung is that was revealed by the full body PET-CT

    sadly I know only too well about all this process

    Wife had breast cancer 11 years ago. Still here. Fit and healthy

    Younger brother died of agressive multi focal brain cancer 18 months ago

    Dad died at the end of this January of kidney infection as a final outcome of his 3 years of treatment for Hogkins Lymphona. He also had prostate cancer, diagnosed 5 years ago, and successfully dealt with.

    My poor mum and sister totally are in bits. Thinking why is this happening to our family. But I am stoic. It is what is. Its and early catch. Tumour chopped out. Onwards to the next stage . . .

  • Had another eye leak this afternoon. Just OH exhausted in bed asking me will I be ok. Being positive of course, but just feeling frightened myself. Want to go back to how it was, but again it's the acceptance thing. Sorry for being a Debbie downer on here. It's the last thing you all need.

  • Sorry to hear of your family losses.

    I lost my mum to bowel cancer 37 years ago and my eldest sister to lung cancer in December last year, it certainly is a non discriminatory disease.

    H  

  • Sorry to know what's going on x

    Great that you can get the scans we haven't seen hubby's scans.

    You think they would show them first of all.

    Wishing you well xxx

  • YuP

    totally agree
    totally non discrminatory disease

    I have a really good mate who is beyond cancer of the esophagus
    A tumour the size of grapefruit
    He lost 2/3 of his diaphram, and now has a stomach the size of a thumb
    He refused chemo/radio, as he didn't want to get permanently debilitated by that
    Pointed out he was willing to take his own chances, make his own choice, live his best life for whatever time he had left.
    11 years on he is running ultra-marathons

    We each have our own journeys