Awake and up all night

Hi, 

Yes i managed to nod back off. 

I am hoping to work right until the op, I need to keep my brain busy! 

Hope you have managed to sleep! 

Have a good x

Hi Gill, Eddie & everyone, I'm still knocking around.  Physically I'm a bit hmm... and M, not so good.  It seems like everyone has it in for me.  The council tax are trying to get £165 a month from me, they've cut my support in half.  I live on my own but the council tax are playing funny buggers.

I copied in my counsellors and MP in a complaint about this.  My social worker is getting in on the act.  It's just everyone is letting me down at the moment!

Nobody takes Tracey my unpaid carer seriously.  The social worker is on our side though.

Hope everyone is doing well.  I know that's not really a good thing to say.  I've just read through a few of the posts.

Hugs to everyone going through a bad time!

I'm going to try and get back into the Macmillan online communities again.

Gill, I see Leeds finally signed Sean Longstaff from Newcastle.  He's a good player but had dropped down in the pecking order, through no fault of his own. No doubt he will score against us, to come back and haunt us.

Will Alexander Isak go to Liverpool?  I hope so now, as he says he wants to move on.  Good luck to him, as long as he has a stinker when he plays us.

Sorry for everything that's going on with you and T, my friend, but carers and the people they care for are an easy target, especially for someone who has no idea what their dealing with, Hopefully, with all your doing and the support things will be resolved soon, and it's good to see you posting again.

Eddie 

Hi guys just to let you know, Annette has the computer gremlins and is unable to post, hopefully she'll be back soon, and if I can pass a message on to her from any of you, that's no problem 

Eddie xx 

Annette, remember, no food or water for the gremlins after midnight!

Cheers for that Eddie. I just sent her a message this morning actually so I hope she’ll get it eventually.

I love chickens and ducks so thanks for sharing your photos!

Sarah xx 

Morning Steve and it's great to see you posting, if only till you're feeling better.  I've been worried but what a lousy time you've been having - a bunch of tripe hounds who've not got a clue!  At least your SW is onside and keep pushing yourself, as much as you're able to, so fingers crossed you'll get results soon.  I'm trying for PIP for my fella; he can't speak for himself but I keep getting asked if I've got PoA - he's lost his voice box, not his mind!  I've accepted I'll get nowt as his carer, like Tracey, but I'm a tenacious sod and the bit's between my teeth.

Hey, I'm hoping Sean does well for us in the PL and it's sod's law he could score when playing Newcastle; seen it happen a few times with our old boys and it stings.  Isak's gone for 125 million I believe, but I laughed at your comment!  That's one thing you haven't lost, your SOH and please hang on to it - it's something the jobsworth's can't have.

Hoping your luck turns for the better and sending you big hugs xxx

Morning Gill

All I will say about the whole benefits system is that you need to be very tenacious, which you are! Speaking from my own experience with PIP, you need to stand your ground, and challenge everything that’s not correct. I’ve spent hours over the last week completing my mandatory reconsideration request now my pip has been reduced on the basis of a phone call with an assessor who actually didn’t know what she was talking about.

I got a copy of the report she made-all 22 pages of it and had to go through it line by line to challenge the lies and assumptions. If you apply and a a report is done, always ask for a copy as they won’t give it to you unless you ask for it. have you been turned down for carer’s allowance? It’s not much but you are a full time carer so why would they refuse? Honestly they make things so difficult you feel like giving up, but don’t! 

Sarah xx

I agree Sarah,When John was about to lose his motobility car I urged him to appeal.My family all wrote letters of support and he won.I had to fight to get mum money for nursing care but was successful.It’s sad that we have to fight but it’s seems to be common.Love Jane x

They want us to give up Jane and make the system very difficult for vulnerable people which really angers me! I’m glad you were successful for John and your mum-it just shows you that we can’t give up if something is not right!

Sarah xx