Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi love. That's a really good idea to call in at the Macmillan place. You're not being oversensitive at all Dingg, your senses are on overload so go get that help as it will make you realise someone will listen. 

    Tell them everything you can, and see what they come up with. I won't bore you with any more details of what happened to us, as it's about you and how you can get help through this.

    Good luck sweetheart and don't give up the fight. Get some rest if possible. Sending hugs xxx

  • Hi Dingg

    You could also contact PALS (patient liaison service) at the hospital about your concerns. 

    H

  • Thanks Gill

    It feels personal but l think the NHS is in a bad way after the pandemic 

    Will do today

    The good news is there is a new cancer nurse at this hospital who is supposed to get in touch. If l ever had my voice heard l would recommend every employer send their staff to Samaritans to do the corporate courses.

    But there you go x

  • Yes l will do.

    Thanks for your kindness xxx

    Hope you had a reasonable nite x

  • Thanks Gill

    Writing here again.

    No it wouldn't be boring. I'm just so sorry you went through so much yourself, l guess thats why you've been on here you know what's it like and can help others.

    Here the same with voluntary things but cancer seems to bring its own unique challenges. 

    One day there will be a cancer jab and youngsters will have them with their normal jabs and the storm will be over.

    In the meantime l think we all on here can be strong enough, l felt terrible last night, but today's a better day. Thanks for the help and to S x

  • SBird

    Lost the message again

    Hope you have a positive day xx

  • Thanks 

    You too.

    I'll be collecting the grandkids from nursery this afternoon so that's good enough for me. 

    H 

  • I agree, kids are great and hopefully weather looks sunny x

  • Hi Dingg,

    You are a very compassionate person, but as others have said, you need to look after yourself too. Initially, I found it very stressful and exhausting replying to friends and family about what was going onm It felt like I was drowning in the shock waves of it all. It's funny l, I think everyone responds in different ways to what's going on and sometimes although it sounds really mean, I just can't manage their concerns and sadness.I know it comes from care and love but sometimes you need your own space to process the practical and the emotional. Be a bit selfish and tell family you're struggling and you need some support. Loads of love.

  • Sorry if that all sounded selfish. I'm not a mean or angry person in the slightest.