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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
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There's something on my mind l have tried to cope with. Hubby told me a doctor approached him and said do not resuscitate is on his file, no one spoke to us it had been put there without consent. The doc removed it as hubby is 60 for one thing.
There is more but not sure its right for others to read but they are so inconsistent and no support has been offered.
I feel very alone as some of the things l now know l cant share with anyone as l am supporting hubby's family through this.
Basically it seems hubby may be more ill than they spellt out, its obvious but they just didn't use certain words
Is this normal are they hoping the penny drops
Like the secret DNR are they incompetent or trying to help, some help if thats how they do it
Hi Dingg. That's really odd about the DNR, without your consent. Why not ask outright why it was put on hubby's file, and about the other things too? I'm unsure whether subtle 'hints' about his condition is a common practice, but if it was me I'd want to know hard facts and not left guessing.
Try not to worry yourself about it now, which is pretty daft of me to say, but when you go next to visit hubby, ask to see someone about what's concerning you. xxx
Just to add Dingg love, about supporting hubby's family. It's so kind of you to help them, but much more important to help yourself through this.
When OH was in hospital I went every day and took 4 buses, I was left to deal with everything at home and the awful depression OH was suffering. It was exhausting but on top of that I had his mother and brother, both car owners, constantly ringing and pestering - why aren't the hospital doing this or that? It was relentless but I snapped, and told them I couldn't answer their questions as I didn't know myself, and if they were so desperate to find out, ring the hospital themselves.
It worked somewhat, but I got ill myself and was hospitalised for a few days in the run-up to OH's surgery. That's another story, but his relative's bombardment, with no thoughts for me, definitely contributed towards my confinement.
I'm not saying hubby's family are anywhere near as bad, but don't let them become a millstone round your neck. You've got enough to cope with right now. Big hugs and love xxx
Thanks Gill
I appreciate you being there.
I seem to be having a rotten experience. The cancer team are a disgrace. I feel worse as l was severely let down in the pandemic by GP and everybody left caring by myself for my fathers palliative
I guess by the sound of it you werent given much support by health professionals. So sorry you were unwell Gill.
Its just they don't have any time for me when l try and ask questions just walking away saying sorry sorry we're busy. Its someone's life we are all dealing with here.
And all this makes me feel scared. They didn't sign post any help for us I'm looking for it myself including financial issues
They didn't say so sorry to have to tell you....or anything kind
I don't think its me being too sensitive but it could be. l am a sensitive person .
I did see a sign in the new hospital for macmillan so will call there.
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