Awake and up all night

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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

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  • Hi all,

    Is there a macmillan champion on now, not sure if Gill is on here tonight

    I've just had an horrendous experience at Morriston hospital again I'm naming it as the patient safety there is getting frightening 

    Hubby was charged at by a violent patient about 2 days ago and his feeding tube was jigged.

    Another patient was punched and none of this was recoded.

    I called in senior matron to get my husband moved. His canula is now spongy and he was visibly unwell this evening stomach breathing and struggling to stay awake shaking with a pulse of 100.

    His blood sugar was 24 and had been apparently for 3 days l requested a doctor be called and was met by an aggressive senior nurse on K ward gastric who said l had made my husband ill myself by panic and asking for a doctor. I demanded a sepsis test be run and this was refused. 

    I had to demand a doctor and was met with aggression glaring and rudeness

    The doc gave him insulin and took bloods.

    Hubby was visibly unwell when l arrived curled up in a ball shaking stomach breathing and groggy 

    If you do have safeguarding system here please to add this about Morriston hospital  Swansea as the dangerous way my husband is being treated is appalling.

    I have given a full account to the on call matron there but sepsis wise they said the bloods may not be back for hours.

    Don't know what else to do at this rate I'm not sure he's going to be well enough to have the results of his cancer Petscan on Tuesday 

  • Replying to my own profile as l couldn't find the right reply button

    Just been in touch with on call matron again and formally requested the 1 hour sepsis test as l spoke to my nurse friend who normally works on 111 and she suggested it just in case.

    Beside myself with the way we've been treated

  • Hello Dingg, I'm not a Macmillan Champion but have not gone up to bed yet. The situation you have described sounds terrible. Your husband is clearly unwell and you are extremely concerned at his condition. You need people at the hospital to explain what they are doing and why they are doing it. To do that, they need to be closely monitoring your husband, carrying out appropriate tests then, depending on the results, administering suitable treatment. In the short term before results are available nurses should be ensuring that his condition is being stabilised as far as is possible using drips or oral drugs approved by the duty doctor.

    Many hospitals are working at maximum overload. This causes huge strain on the staff and facilities, an environment which can put patient care at risk. You are wise to keep a close eye on proceedings. I hope the doctors and nurses on duty find the time to give you information and reassurance about their intended actions aimed at improving your husband's condition. All hospitals are aware of sepsis protocols. When I was in with sepsis in 2018, my temperature shot up to 41degC and I had convulsive shivering. I remained under observation in A&E for several hours before a bed was found. The only treatment I had was water to drink and ordinary paracetamol. The reason was that they needed the results from blood tests to see which antibiotic would best attack the problem but also needed results which indicated organ health so that for example the antibiotic would not overpower failing kidneys. It took 8 days to turn my sepsis around. 

    Hoping and praying that your husband receives treatment and that you are given better information. Love Ray xxx

  • I’m so sorry you have both had this awful experience.You have done the right thing in demanding help for your husband who is obviously unwell.You shouldn’t have to ask for a sespis test the staff should be on the ball and they are evidently not if your husbands glucose levels were that level for days.Observation should be a key skill for anyone caring for people.Patients should feel safe and cared for and loved ones confident in the staff.It is sad and concerning that we have to fight to get help.I really feel for you both.I hope tomorrow is a better day.Love Jane x

  • Dingg, I've just woken up and seen your posts.

    If you're still around, try to get the ward nurse to contact the Night Manager for you as they're in charge of the whole hospital, not just the ward. If you get through,  strongly express your concerns about hubby's condition and the safeguarding aspect too. Tell them everything you've told us as sepsis is an emergency and should be dealt with immediately.

    Wishing you the very best sweetheart xxx

  • Thanks Ray

    Thanks so much.

    I had to fight to get medical help and now l just feel frightened in the aftermath.

    I recently checked with the on call matron and she said they'd action the sepsis test which they said they'd do several hours ago but the team are on it now 

    Thanks for your help I've just panicked 

    Will make a cuppa and try and settle

    Many thanks

    Xxxx

  • Thanks Gill

    Just been doing those things

    It really was crazy having to fight to get help

    I was so scared my chest was tight and l still feel quite shaken but will get a cuppa.

    Duty matron said to call her 7am for full updates. I'm hoping its diabetic related but so shocked he was left in that state when l arrived.

    Done all l can now with formal sepsis request and my pall on 111 told me to get them to do NEWS test chart and some other things 

    Will get a cuppa and try and calm down as l have done all thats possible. 

    Thanks Gill xxxc

  • I hope you get some rest Dingg,You have done all you can and at last something is happening.Take care love Jane xx

  • Thanks Jane

    Its that, that shocked me he was not well and even in front of them they were saying he's fine when 24 reading high blood sugar for 3 days which l wasn't aware of is gross misconduct in my opinion and l didnt know about it.

    Have had contact with in call matron and alk tests in place now and ringing her 7am for updates

    Thanks Jane much appreciate you being there, I'm just a bit shaken up. 

    Will make a cuppa and try and calm down as I've done all l can for now x