Awake and up all night

It must have been awful lovey. OH was in some sort of haze and couldn't find the words either, so just nodded blankly when they asked questions.

It's a good job I was aware of the signs of a stroke, as even though his face didn't droop he was acting out of character and not on the planet. Luckily the scans didn't reveal any bleeds on his brain, but he was never the same and decided to give up driving. His cancer and subsequent mobility issues have put the tin lid on it.

Taxis are now the order of the day, but since the weather improved we've started going on the odd bus, so all good  xxx

My face didn’t droop either Gill, but I just couldn’t get words out when I woke up and tried to speak to the cat. So I sent a text to my OH at work and it took me 20 minutes to write one sentence of gibberish. Luckily it was clear I was in trouble of some sort, but all was well in the end. 

Sometimes it does seem it’s just one thing after another and we never get a break, and I’m speaking about both patients and carers here. We were just speaking about that earlier about how the last few years have been so difficult-first with me being ill, and now all the things for OH. But we are grateful to both still be here, and still happy together-we’ll not ever be rich, but we’re doing ok and feel very lucky really. 

I’m glad you’re able to get out and on the odd bus instead of taxis-well done for hubby especially doing that. It will give you both a boost in the sunny weather to get yourselves out.

Sarah xx

Hi everyone,

I’m brand new on this forum and like everyone else wish I didn’t need to be.

My mum was diagnosed with lung cancer last week with spine, brain and possibly liver metastasis. Previously fit and healthy at 75, had only experienced back pain.

i also have a sister with special needs who requires help with her care. Since the diagnosis I have been signed off work to help with this plus my own stress .

my mum received radiotherapy on her spine as doctors were concerned with damage to her spinal cord and is on steroids. They have taken biopsies from her lungs and we are currently awaiting results. She is home and doing ok, but very tired. 

I just feel so overwhelmed and scared for the future and feel like I’m drowning in this, but having to be strong for those around me. Don’t quite know how to process and cope ….if there is such a way to do this.

Thanks for listening!

Didn't mean to put an angry face. Should have been a heart. Damn technology.

Aw thanks Sarah, and even though it's just a bus it's liberating and has given back some independence.

You're spot on - even when everything seems to have gone to pot we're still here and still making a go of things. And on that note, it's time for OH's TLC routine, which tends to be a bit later on Friday nights as there aren't appointments at weekends. Yippee! xxx

Hi Missi. Similar to my wife. Lung with brain metastasis and bone. The fact that you feel overwhelmed is totally understandable. Be kind to yourself and try and get some rest. Take one day at a time You're doing a great job supporting your family. The guys on here are wonderful. Let off steam whenever you need to. All my love and support.️

Oh, no worries! I have real sausage fingers so often click the wrong thing!

Sarah xx

Thank you so much ️ 

yes one day a time is the only way I think.

I’m sending love back ️

Just got to keep smiling Gill-we have a happy home and you and hubby do too, and that’s priceless.

Sarah xx

That is lovely Sarah. I had rocky from a kitten for 10 years then socks a rescue who I was just getting right before she died. Then I had beauty a ginger for 3 years when she died I couldn't do it again.