Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • You're very welcome sweetheart, and when you're feeling less stressed, do come back here, whatever the time, as a few of us will be around to listen and offer our advice.  No need to be lonely, as telling people does help.

    Hugs, Gill xxx

  • Please don’t cancel your surgery or you will have to wait until another becomes available never feel alone just think of the song you’ll never walk alone with hope in your heart plenty of people on here supporting you go for it chin up Rose

  • I'm so sorry for your loss, but your lovely mum will be glad she got her final wishes, passing peacefully and surrounded by the people she loved the most.

    I hope that as her very caring daughter, this has made you feel more accepting at this sad time.  You've joined many of us here, privileged to have been with a parent on their final journey.  She'll always be in your heart.

    Love and strength, Gill xxx

  • I hope you don't mind me telling you a story.

    I was close to my dad and he died of a sudden heart attack at 63, I was 33 and it was tough to accept. I still remember the day like it was yesterday almost 15 years later. I've had a few signs from him over the years but I'll tell you this one.

    So for 20 years for various reasons I hadn't been on a foreign holiday... 2 years ago I booked a holiday to Tenerife... I arrived at the airport, it was coming up to my birthday.  I looked up to check our flight number on the board... it was TOM1706.

    My dad's name was Tom and his birthday was 17th of June.

    I never doubt that he is looking over me and I hope you never doubt that your mum will be looking over you too.

    So sorry for your loss 

    Steve xo

  • Wow, Steve.  What a wonderful story that is.  I'm a firm believer that there's something beyond this plane and I think you've just given me another reason to believe it.  I'd never brush it off as coincidence xxx

  • Just if it might help anyone else suffering from restless legs...

    I remembered I had one of those shakti acupuncture mats... the last couple of nights I've lay on my back with it under my calfs for a while, until it becomes a bit uncomfortable... seems to have helped so far and slept quite well last night.

  • So emailed specialist nurse again who said they have now got the referral letter and they are looking for an appointment for me, but she doesn't know their capacity!!! Still not got an appointment! Still wide awake and not sleeping. 

    Family asking me repeatedly if I have an appointment yet! Almost feels like it's my fault.

    Don't think there is anyway of changing the system whatever that is.

  • What exactly is restless legs? I think I might have this or it's just stress. My legs get unbelievably restless every evening/ night is there a solution to this.

  • Aw flip!  It looks like they've put you on the waiting list, and you're right inasmuch there's not a lot you can do.  My fella's ended up on lots of them, one even for his major surgery, and another similarity is that his flaming mother also blamed me!  I was fuming, so understand how you feel.  It's looking like you'll have to wait it out love.

    Gill xx