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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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I'm back from shopping now Helen, and yes, the posts were getting jumbled when a few of us were on last night. They might do another upgrade?
Ukiboy's right, we would miss your posts and you normally give the Reveille bugle call to get us all cracking xxx
Hi Uki
I've become more anti-social since it kicked off with OH and everything that's happened since.
I know why though - I don't get on at all well with his mother, who's made it her business to tell the world and his wife our business, usually giving out the wrong information whilst she's at it. I've had random strangers approach me and ask how his stents are?! What? He's never had one, and then I've had to go all round the houses to explain and put them right. I got sick of it and now basically ignore everyone I don't know personally.
I much prefer the company of those I know well, as they don't pressure for information unless I give it. I like to visit my eldest as we're very alike and just chat about other things, even though she asks how he's doing first, then we get down to the serious business of having a good laugh. It's a brief respite back to normality.
I'm not too fond of visitors either, as their doom-laden faces depress and annoy me equally. They rarely know what to say and then I have to do the lion's share of the yapping to fill all the gaps. Poor OH can't help out with that. I've probably put most of them off now, as they'll most likely perceive my barely hidden irritation. Not his mother though, unfortunately.
But hey, this is one of my favourite places as you all 'get it' and understand that there's other things to chat about for some light relief. I've never come away from here feeling wound up.
So, those are my thoughts and some may resonate with you lovey. I just hope you don't have an unsupportive busybody around xxx
I recognise many of those characteristics in myself. I try not to be too standoffish but it is hard work explaining to others why one's mood bounces up and down, depending on how cancer is clobbering you on a particular day or if you've had some tough treatment to endure. This, in my case, is an additional layer on top of simply getting old and distinctly Victor Meldrew at times. The beauty of this forum is that we can interact by choice with people who have first hand experiences often similar to our own. Airing our concerns in this environment or just 'chatting' about our day to day life, preferences or plans feels more relaxed than having some bod standing in front of you. Yet the empathy that can be felt or given on here is real enough and valuable. It has certainly helped me and I hope I've been able to return the favour now and then.
Sbird, keep posting. I'm not the only one who enjoys your presence on here. Ray xx
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