Awake and up all night

I've only joined here today.i have read posted here before. I will take another look. My cancer is very rare and it feels like the harder I try to deal with things the more stuff gets thrown my way.its a lovely journey.ive been trying to find help but everywhere has such long waiting lists.

Ah, you are new to the forums then. When a community champion sees your post, they'll be able to provide a link to that group, and you might find someone with the same type. I'm guessing you're pretty young as leukaemia seems to get younger people. Sorry if I've got that wrong sweetheart xxx

I'm 43, so right in the middle I guess! 

It's young as far as I'm concerned. Not to worry, but has your consultant given any indication of the waiting list times? I know your treatment's being put on hold, but they should be able to put your mind at ease if you ask xxx

No. He said he put the request in as urgent and that is chemo dependent. He will chase it again on Monday. It's frustrating everything stops for the weekend!

That's a given I'm afraid, but do some chasing yourself if things slow down. Being a pest often pays off and never be afraid of giving some nudges. Monday must seem a long way off right now, but I promise it'll be here before you know it. In the meantime, drop in here anytime you like as we talk about everything and it'll hopefully take your mind off the worry. Do you have support at home hon?

Yes, I have my husband. He's been amazing. But it's still a long lonely thing to do. I also have three teenage children. And my dad. My mum died of cancer several years ago.

So sorry about your mum, love, but you're lucky to have amazing support from your husband. He'll obviously be worried too, but lean on each other and reassure your kids if you can.

Have you got any ways of getting off to sleep? Folk here are full of great suggestions as it's a common theme, trying to beat the anxiety and looking for a good night's rest xxx

I will have a look and see if I can find anything helpful. I've never been a great sleeper so am used to broken sleep, and at least now I can take naps whenever I need to! Is there any reason why you also can't sleep?

Same as yourself really, in never being good at sleeping properly, but that was compounded when my OH got his cancer diagnosis. The sleepless nights kicked in through endless worrying about him, but they've been massively alleviated since I joined Macmillan, especially on this thread. The folk here are smashing and it's like making instant friends who really understand all the ups and downs of our journeys. Plus, they're here all day long, not just in the twilight hours, so if I'm having a rough day, I'll call in here and get an immediate lift. It stops me from being a grumpy old git through lack of kip!