Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • FormerMember
    FormerMember in reply to Gill H

    x

  • FormerMember
    FormerMember in reply to SarahH21

    Not really - after bowel cancer, left with this vile STOMA, then 8 months later liver cancer and now I have a eye problem, they don't think it is cancer, but.... I have to have a biopsy, but first I am having a MRI scan. I have had to go to so many hospitals... the cost of parking is disgusting £5.40 for just an hour....then there is the travelling costs too - petrol, wear and tear on the car which is old.....................I/we get no help from anyone. I asked about help wsith transport and they said I/we were not eligible

  • Hi, apart from the obvious questions, staging? Treatment? Plans? Affects? Pros cons? Is there anything I should add to my list of questions for when I meet with my consultant tomorrow? 

  • Hi Chloe.  After thinking for a good few minutes, I can't think of anything except a pad and pen to write down answers.  But you're so much on the ball you've probably got those at the ready.

    Anyway lass, sending you loads of love and luck that it all goes well tomorrow.  Fingers Fingers crossed xxx

  • Chloe, now I've thought about it, of course you'll have a pad and pen -, it's what you've written your questions on.  Duh!  But here's one, any dietary do's and don'ts during and before treatment.  Also, you could ask about clinical trials you could fit?  And now I'll pipe down.

    Again though, the best of luck from West to South Yorkshire xxx

  • Thank you Gill, yea I’ve really put a lot of effort into research but there’s always something I’m likely to forget to ask and it’ll pop into my head when I’m half way home lol.. I’m a little scared about clinical trials, I really don’t want to be a Guinea pig but at the same time I know trials have gone through so much testing before they offer them to patients and if they work they could be ground breaking for the future… the dietary advice I’ll definitely ask about though.. thanks again hope you’ve both had a lovely weekend x

  • Hi Chloe

    There are very few current open clinical trials for your type of cancer and none in our area that I’ve read about on Cancer Research UK, which has a database. I tend to try to keep an eye on any new developments in treatment/trials just in case! 

    Trials are not usually a first line option-they have very specific criteria for joining and are often used where the standard treatment hasn’t been successful. I know you’re one for researching as much as you can, but to be honest, I don’t think that clinical trials are something you would need to think about at this point, as the hope would be that standard first line treatments will be sufficient. 

    Sarah xx


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  • Thanks for posting that Sarah as it's really handy to know.

    Hugs xxx

  • Hey Gill

    One of my friends did take part in a clinical trial and I remember how difficult it was for her to be accepted on it in the first place-months of extra testing before it even started. That was a few years ago now-maybe 4 or so-and it was my only personal experience of knowing someone in real life actually going through it.

    I think I maybe thought at that time you could just ask your doctor to go on a trial and you’d get on it if you wanted and maybe it would be a miracle cure of some sort. I learned a lot about it from her-we had the same type of cancer-and I could see how difficult it was for her.

    Sarah xx


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    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Crikey.  I knew nothing at all about how it all worked, but I do now, so thank you.  It's always good to know these things.

    You'll probably know about Active Together, sponsored by Yorkshire Cancer Research and based at Hallam University?  Our CNS referred my H and it's really good; twelve weeks of weekly low impact exercise classes for cancer sufferers to enhance recovery.  They let me join in too, I need it, and it's widely accepted that exercise can reduce recurrence by about 30%.  I think they aim to reach further afield so more patients can benefit.

    I'm waffling again... just tell me to put a sock in it! Joy