Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Oh Eddie, you do make me laugh and I snorted about the pecker thing, making H twist his head towards me with a raised brow.  I explained what I was laughing at.

    I think the doctor was impressed with my prowess, cunningly performing a swift lary tube change and all the other gubbins whilst on the corridor.  I even got an impromptu round of applause from her colleagues who were busy observing my finely honed skills!  This was more likely because they'd found out we were going home, negating the need to start faffing around with his neck stoma's apparatus.

    Anyway, he's much better today, thank you, and the mucous has stopped resembling manure and almost looks normal again.  The antibiotics possess powerful magic . Hugs xxx

  • Hi Eddie, I’ve not been there yet but that’s where I’ll be going, I’ve just looked into the firefly, it’s really useful to know it’s there if I need it, the canteen is useful to know also I’m sure that’s where my other half will be when he can’t be with me lol 

  • Hi Sarah, that’s really reassuring to know, I’ve not yet been for an appointment but I’m sure it won’t be too long.. it’s nice a few of us are so close.. 

  • Hi, don't tell anyone but like most of the guys on HT for prostate cancer, I like how it opens you up to your emotions, and yes it was early in my diagnosis, but I  like the new me regarding being emotional, not so keen on the other things, the moobs especially.

    Well my friend the reason I get seen so quickly at A&E, is not because my cancer is terminal, but my heart which by some miracle has kept going for 59 years is playing silly buggers, but hey ho, I'm still enjoying life.

    Eddie xx 

  • I've forgotten about the pecker thing too, zero libido,"thank you HT," does that to you. Lol, but Sheila and I have found alternative ways to be intimate.

    Wow well done you, changing a Lary Tube, are you a KY jelly girl or not?. And I would imagine the staff were happy to not have to do it themselves, how could they not want your OH or your company, it's  good he's home, in good hands, and the magic mushrooms are working, and he's looking much better down there, and thank you for not posting a photo, lol.

    Eddie xx 

  • Awww Chloe, your welcome sweetheart, Firefly are amazing, they'll take you both there and back, cutting out all the stress and hassle of traffic jams, and finding a parking space, and you will be able to talk to others on the journey who will share their experiences. If you decide to make your own way there, can I suggest you do a dry run, to give yourselves some idea of what to expect, and as Sarah said, and I agree the staff at Weston are the nicest people you will find in any hospital.

    Eddie xx 

  • My husband has been a regular visitor to our local A & E over the past few months....always in the evening, or at weekends. It's a lovely, friendly hospital. Unfortunately, their blood testing lab is only open during weekdays, so if blood tests are needed, they have to be taken to the main hospital by 'blood bikes', an amazing charity. It takes hours waiting for the results! Usually, he's allowed straight home once the 'big' hospital phones the results through.

    The joys of living in rural Scotland!

    xxx Kate

  • Hi Eddie (laughing again at your post) it's not KY, although that would be acceptable, but Optilube Gel.  You put a blob on your finger and smear it up and down the shaft of the tube...whoah whoah!  I'm getting as bad as you!  You're a terrible influence young man and sharp words are in order!!

    PS I'm not sure how to post photos yet but I'd scare the living daylights out of folk if I did!

    Hugs xx

  • Hi Puddock, I'm smiling reading this, though I'm truly sorry M has been going to A&E so often, the evening/weekend times are interesting, there must be something as to why, it can't be random, maybe it's a cardio thing, I don't know, but "blood bikes,"are amazing, what a wonderful group of people, our blood tests, are not without issues, they don't do them after 1 pm, if their OK they don't tell you and sometimes you get a strip test, which gives a very  basic group of results, xx

  • Now now Gilly, I'm not responsible for what goes on in your mind, and I've never been called a terrible influence in my life, lol, somehow I'm not so sure about you my friend, but the young man reference is greatly appreciated.

    I knew I was getting old when I was in the supermarket late one evening, there were 2 ladies wrapping up for the day, both around 40yo, and one of them asked the other if the shop was empty, to which her friend replied, no just some old guy, I was only 57yo, xx