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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Thanks Eddie-well, it seems there’s a few of us within quite close proximity. I love living here after spending all my life in Scotland till I was 50. We will drive up, as I can’t get on a train nowadays but we’ll break the journey staying at friends near Edinburgh on the way as it’s too far for me now to do it in one go. Worth it to see family again, always. My granddaughter turns 1 in August so I’ll see big changes when I go up.
Just 6 appointments! It’s enough for me having one in a week! Really hope you get a stable result-fingers crossed for that. I’ve got another appointment lined up in 2 weeks for the retinopathy clinic but luckily just at Bassetlaw-seems this new diabetes diagnosis is getting a flurry of attention for me now.
For now, we’ll just enjoy our last full day-I am looking forward to seeing my little cat when we get home-I’ve missed her!
Sarah xx
Hi Sheelagh and lovely to hear from you. I'm so glad you're feeling better in yourself and have finally got things in place, as it does give you back some control.
I have been sleeping better so thanks for that lovely. We've also got a few hospital appointments booked for around the time of yours, one on the 17th too, so my fingers will be tightly crossed for you on that day.
Keep smiling, love. You're doing a brilliant job!
Gill xx
Hi Chloe and a warm welcome from me, to our little thread, so you went to Weston Park as well, such a lovely place, well the people, the buildings not very welcoming, just a shame about getting there and parking, have you tried Firefly, there a cancer charity that takes patients to and home from the hospital for free. Theirs also the Weston park cancer charity based behind the hospital, which is great for advice, support and therapy's, and not forgetting the canteen on floor 3 which does lovely food for a couple of quid, I love gardening too and have roses, really tough plants, I prune mine with a hedge trimmer, they don't mind in the slightest, just a bucket full of manure and their happy.
Eddie xx
Aww, sorry to read you’ve had an a&e trip-but best to be on the ball and make sure when something looks off. Mollycoddling is what we patients need sometimes, as well as our loved ones keeping an eagle eye on us! Hope he’s feeling better soon when the antibiotics kick in fully.
I’ve not kept up with Wimbledon for years now…not even sure who the main players are nowadays but I was a fan of Nastase back in the day!
I will have a lot of questions to keep the nurse awake this week. They never read my notes, never know about my surgeries, or any of my issues, but I’m more gobby nowadays! When I went for my stroke review, the nurse asked me if I had any problems with incontinence, and was suitably embarrassed when I said no-I don’t have a bladder or rectum! She was a bit sheepish and apologised and said it would teach her to read a patient’s notes before an appointment!
Sarah xx
Oh you are funny Sarah! It's the best medicine for keeping your pecker up.
Yep, when I asked how he felt this morning, I got a double thumbs up and ten on his fingers! They were set to keep him in, wristband on, but the doc DID read our notes and decided I was capable of doing all the nurse duties for him. Phew! I'll remain on high alert though.
Enjoy today and 'see' you when you get home xxx
Hi Sarah, always wise to break up a long journey, and Edinburgh is lovely, alas being an idiot, or male, I do long drives in one go, just stopping for a cuppa half ways, and end up falling flat on my face when I arrive as my left leg has gone to sleep, but if I had to, I'd walk all the way to see family. I noticed you said, just at Bassetlaw, if your local, in Worksop is a wonderful cancer charity called Aurora Wellbeing, has everything from counselling to craft groups, best wishes for your appointment, and seeing your furry friend will be wonderful,
Eddie xx
I had a friend with cancer recommend Aurora to me several years ago and it sounded fantastic. However I can’t drive and I’m completely housebound so it’s impossible for me to get to. I’m on my own for about 10 hours a day while my OH works, and I haven’t been outside the door by myself since 2019, so I can only dream about being able to go.
I’ve had all the info about the local car scheme etc but part of my issue is my extreme anxiety so I’ve never gone further with that. I don’t think I could go anywhere with a stranger. It can be very frustrating! It’s about 10 miles away from me but might as well be the moon!
Im going to see a private chiropractor when I get home and see if I can get any help there with my mobility-I’d rather be able to walk again than have a lottery win! It’s so debilitating.
Sarah xx
Aw, I totally understand about not really wanting to be around people who 'don't know'. They mean well, and their sentiments are sincere, but only those who've been there totally get it. That's why I find being here such a comfort and never feel I can't say things that others may find grisly.
My sister lives in Sheffield and with her son (52) being diabetic and prone to pneumonia, she's done the South Yorkshire hospital rounds too. Aw flip - the scenery! Well Sheff's really hilly so you could brace yourself for a long 'rollercoaster' ride instead. When I was doing those long drives I used to pick out landmarks so I'd know when I was getting near the hospitals; Popeye's Chicken eaterie for Pinderfields and Elland Road (MOT) for LGI and Jimmy's. It made it more interesting, for me anyway.
Enjoy today and hugs xxx
Oh that’s brilliant Gill! I’m sure you are a very capable nurse and you know him better than anyone. Nothing like being in your own place and bed to get over something with care from your partner. Well done!
Sarah xx
Just a quick one Eddie, and then I'll crack on with the day.
Aw, so glad you've enjoyed having your little angel to stay. Babies are smashing little bundles - especially when you can return them to their owners!
I went to Fort William and Elgin many years ago when we followed the whiskey trail. Gobsmackingly beautiful!
Have a great day with Sheila and good luck with all those appointments as you've certainly got your work cut out with that many! Hugs to you and little angel xxx
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