Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi Eddie.  Just saw your post before I have a few tasks to do.  Yep, they certainly are brave.  My uncle had an all white JR, Sam.  He was as soft as anything - until he spotted a rabbit or something in the field.  His lips would curl back and reveal several white, razor sharp fangs before tearing off in hot pursuit of his target.

    One day, he'd gone on his travels and had been missing for ages.  My uncle went looking and eventually saw Sam mooching up the lane, blood on his face and head.  Uncle Ted thought he'd been injured until further inspection revealed no injuries, just blood on his fur.  He surmised Sam had got in a fight with a bigger dog and gone for the throat, injuring his adversary.

    I remember my uncle saying, and I quote, "It's not the dog in the fight, it's the fight in the dog."

    Gill xx 

  • Sam sounds quite a character,  a JR, through and through, Poppy is happy to play  with anything, from ducklings and kittens to goats and Emu's, don't ask,  but the 1st time she saw a rat, she completely changed,  nature. Nurture I don't know,  oh, she doesn't like short adults or people in hats, bonkers lol, enjoy your jobs, I'm hoping to  fall asleep soon,

    Eddie xx

  • Hi Julie, I know it is difficult but try not to worry, it won’t do anything but make you ill. When I was in hospital for a spinal decompression the surgeon told me that I could be paralysed when I came out of the anaesthetic or have one of several possible outcomes after getting operated on the spine. Without the op, my legs wouldn’t hold me up so I felt it was Hobson’s choice but at least with the op things could maybe improve. Sometimes you’ve just got to go with the flow. I hope all goes well but remember the first few days afterwards things sometimes feel worse before they feel better! Please let us know, when you can, how you get on!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi Gill & Judy, Just to let you know there is also a Book Readers thread on the Incurables forum, so you can see on both what they are recommending. That will keep you busy!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • I will let you know how I get on after surgery I know it's for my own good I'll take each day as it comes xx

  • Me again Eddie. You may well have nodded off, but I'll reply now as I'm off to see my eldest lass tomorrow and won't be back here till much later.

    My fella's not driving for now (I can't drive) as he's got mobility issues in his neck and shoulders, hence the exercises to hopefully relieve them.  We were aware about the excessive mucous RT causes as loads of head and neck cancer sufferers also succumb.  It's different for him, though, as being a laryngectomee means his nose and mouth are now redundant and his only air supply is through the neck stoma, causing a build-up of mucous in his lungs as they have extra work to do.  He needs to use a nebuliser several times a day and this will be for his lifetime.  Phew!  There endeth the tutorial.

    If you haven't dropped off, the above should sort you out!

    Take care,

    Gill xx 

  • Eddie, what about your hat?

    Steve (SteveCam)

  • Poppy's fine with me in a hat, that's so nice of her, but I  can't leave it lying around or the little so and so will tear it to bits.

    Eddie 

  • Thanks for explaining my friend, though I'm sure, there will be more to it than you've explained, and I wish your LOH, every success in getting his licence back, and soon. We, Lesley, the kid's mum and I are also visiting family, our youngest and only son and family in Shropshire for the weekend, they had twin girls 4-5 months ago, and we visit as often as we can, which is difficult, as we're both going through cancer journeys, but we're hopeful Lesleys results on Tuesday will bring good news and our kids won't lose us both. I did nod off, with a little help from my partner Sheila, I couldn't possibly explain what she does, not on an open forum lol, and have a lovely time with your eldest daughter, we are blessed to have 3 girls 

    Eddie xx 

  • Hi,

    My dad has prostate cancer. It's spread to his spine and ribs. He is currently part of the care in the community thing so has a hospital bed at home/commode and carers coming in twice a day

    His mobility is effected so he doesn't really get out of bed other than when they change it or to clean him. 

    He's wearing nappies 

    He isn't eating or is barely eating and is just tired all the time . 

    I don't know what to do sometimes. I feel guilty and like I'm not doing enough and I feel guilty for hanging out with my friends and not wanting to spend time with him because he isn't himself anymore. I feel guilty for the strain this is putting on my mum and that I'm not doing enough. 

    I'm trying to be there, and also take care of mum and make sure she's getting out, and take care of myself and do things for me whilst working full time. 

    People say to me I'm doing alot and I've taken alot on and even dad has said he's proud of me and thankful for me but I just feel like a terrible person. Like I feel like I'm doing the wrong thing but I don't know what the right thing is. 

    And he is going to die and what if I haven't spent enough time to with him now and I'll regret it but it's so heavy to take on that sometimes I need breaks otherwise I'm going to fall apart 

    But then I feel like I don't deserve breaks 

    I'm having alot of anticipatory grief. He's really sick and there's nothing they can do but then I just keep imagining the funeral and life after and how am I meant to cope without him but it's like he's already gone. He's not himself