Awake and up all night

Hi again my lovely, and I'm so glad to hear you're starting to feel better.  I'm not surprised you've had a lift as Papworth has a fantastic reputation.  Well done you, and Friday is just around the corner!

I'm not medically trained in the slightest, but I'm sure better pain relief could be prescribed?  Maybe your GP could sort you out an alternative to ibuprofen, seeing as you're not happy taking it.  Even if you haven't struck up a rapport with your assigned nurse, a bit of pestering sometimes works.  I'm unsure which forum you've joined that's pertinent to yourself, but you could try posting a question there, asking what pain relief others were prescribed.  If others here pick up on your situation they may be able to help.

Thank you for the update Salgo, and things will start to come together very soon, fingers crossed.  I hope you haven't been wearing yourself out with housework as that's something which can wait, at least until you feel more up to it!  And yes, you're right about the members of our little family being a brilliant bunch - I wish I'd found them months ago but glad I have now.

Sending you another big hug xxx

Housework.....what's housework?  So the answer is no, just looking at it and thinking a little bit at a time.

 it's the best way!  When my OH was in hospital for over three months, the house went to hell, as I simply didn't have the time, what with the constant toing and froing.  When I eventually got wind that his discharge was upcoming, I panicked, knowing his team had to do a home visit.  I got stuck in, but then thought they probably wouldn't be inspecting the place with a fine tooth comb, just expecting it to be clean.  Panic over.

You've got the right attitude hon, a bit at a time xxx

He said to me all the time that he wants someone to go to bed with him, because it’s the last time you ever does, but he just things and doesn’t tell me that he wants them doing and then burst out in anger and snaps at me as a temper snaps not a violent physical I mean he said he doesn’t want sympathy so I can’t talk to him about this because it involves sympathy but I don’t know how to get a costa and I can’t sleep I can’t do anything other than think about it so I sit on my own and go to Maddie defence mechanism are coping mechanism but then that causes him to go more

Sorry, ended in causes him to go more short tempered with me and I don’t know what to do. Thank you for listening and helping if you could take the time I’d appreciate it so much he has also been told that the chemotherapy has rung the bell cancer so he has four weeks to think about whether he wants to have more chemo which would in the consultant size work I’ll cut it out but he doesn’t know what to do for the best I just want it over and done with as he feels like he’s going to kill him

What should I advise as he has asked me what I think

Hi Salgo,  sorry for the short reply, it's been a long day for me, Glad to hear of some good news on your part, just a little word on ibuprofen, you shouldn't really use it for  more than 10 days for bone pain. XX

Have been trying to use it sparingly. GP before knowing this would be cancer gave me Naproxen but I can't take them. Will try and sort out pain relief on Friday. I'm not one for taking tablets but think that will be changing now

Hi Salgo, it looks like your on top of things my friend, and I'm glad Naproxen is off the table as it can hit you hard, I  hope they can sort something out for you, I'm only allowed paracetamol for my bone pain but found a hay-fever" I don't have it," over the counter drug helps me  

Eddie xx 

Awww sweetheart, I'm so sorry for what you are all going through, sadly cancer and it's treatments as well as being a tough journey physically, can be even harder emotionally, and it's no one's fault my friend, many of us can relate to your experiences, and the treatments have to be brutal to wipe out the cancer and your team will be monitoring everything to make it as manageable as possible, so any issues should be mentioned to your team, as often they can be treated, and I would suggest you both sit down with your consultants and ask them every question you can think of, then you both take a couple of days to think about where you want to go regarding treatments. There are many forums on the community, where you can talk to others with the same cancer my friend, as well as a carer's forum and a wonderful helpline where you can talk to the Macmillan team 08088080000. Please get back if I can help with anything.

Eddie xx