Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Sorry Uki, had TLC straight after replying to Saz Disappointed

    Did you live in that dangerous dive when you were a student hon? It sounds horrible Confused xxx

  • First place me and OH lived together. I think the landlord would get charged by the police now, but we didn't have much money and were young. We kept each other warm when the temperature dropped.

  • Hello  

    Another warm welcome to the group from me, although I am so sorry to find you joining us. 

    * You have had a great suggestion from Gill - ring our Support Line in the morning on 0808 808 00 00 (8am to 8pm 7 days a week) they can help.

    * We have another group you can join for support too and here's the link you need:

       Supporting someone with incurable cancer forum 

      Just click on the link I have provided and it will take you there.

    Stick with the good folks here too - they are a great bunch.

    Best wishes - Brian.

      

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Crumbs Ukes. Unscrupulous landlords are always on the lookout for skint, easy pickings.

    But you had each other for your starter 'home' and look where you are now, as the glimpses we've seen of your home now look gorgeous.

    I'll bet you polished the proverbial T, despite the glacial conditions. The poor shack was probably thrilled to burn down to get some warmth!

    Wonders if there's any photos in the album? Thinking Hmmm

    Sleep well tonight you two, and sending love xxx

  • Hi Gill and the gang!

    Just a quick update from the consultant today. 

    He was very lovely, apologised for what happened to me and was cross about the mix-up in the appointments. 

    He's come up with another plan.  There were 2 chemo drugs I took that could have caused the low sodium. One is now on my notes as an 'allergy' so I never have it again and the other, which is unlikely to have been the cause, we are testing out tomorrow.  I'm going in for the day, they'll do me a blood test, administer to chemo and then blood test me later in the day (I'm staying the day).

    The new chemo will be checked on Friday for any reaction and then they'll start harvesting stem cells next week. I can't stay in the Royal Berks as they give me the chemo in the evening there, and then I have to go to Oxford for the stem cell harvest. I have to do this for 4 days! It's a bit complicated but I'm feeling ok about it.  It's still the best option for a stable, long term remission, despite everything. I'm just taking it a day at a time Muscle. Had a few tears but got to pull myself together now!

    Just got to get through the next couple of weeks!! xxx

  • Glad you had a great time Gill xxx

  • I'm also sending lots of love and agree with Gill, phone Macmillian and ask for some help.

    Julie xxx

  • Julie, thank you so much for the detailed update hon, and I must say you do sound much more positive since the rubbish last weekend, which was their fault.

    You know we're all right behind you, and praying the revised treatment will do the job right this time and no more time spent in ICU.

    All the very very best for tomorrow hon, and the rest, and you show 'em how it's done MuscleMuscle

    Take some things to keep you occupied if there'll be long breaks, and maybe another update here so we know how you're going on.

    Hugs, strength and love zooming down to Reading right now xxx

  • Thanks Gill. I'm just taking it a day at a time. If I try to take in the whole process, I don't think I'd get out of bed! 

    I'm going to the Royal Berks cancer centre tomorrow.  I know that, they know me so I can do that. The consultant will come and see me tomorrow and fill me in with the next step. I'll fill up with hospital tea to give me strength!! 

    I do feel more positive but still scared of another set of side effects!! I know everything has them but half the time you just ignore them as it's 1 in a million or so but when you're that 1 in a million, it's scary!

    Still, day at a time and I'll get through. It's a test of my resilience!! Rofl 

    Thanks again for your support xxx

  • Evening folks Fuuu! Just caught up with all the chat!

    How are we all doing? Err  how about you send the NHS a bill for £160.fir 'messed up' appointment and down payment on stress compo?.Slight smile

    . Well hi  you still speaking to us commoners after all that swank?

    Cheers