Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Thank you Julie I have osteoarthritis too so it is painful for me to walk. My right knee gives way when I go up or down steps. Thanks for your reply. I am determined to get out. 

  • Hi  Wave

    The vac is a Vax air stretch pet Max I think. Good for pet hair it claimed and well I pull enough of it out of the dust canister Grin It is more substantial than skinny stick ones but still very light and stands up by itself..OK end of advert.

    Err I need to shout again! OI! YOU LOT! Listen up! Regular folk have no idea, NONE! of the personal resources involved in cancer journeys. The 'what?s',  the 'ifs',  the 'really?s', the 'again!s: ... physical, metal and emotional marathons and boxing matches ... however, I will kick anyone up their aching backside who forgets it for themself!

    You! yes, you! I know how it happens, we get through the next thing and the next thing and we don't know how but we do, and the next thing, and there is still washing up and the bin needs putting out. 

    Stop believing the hype... yes we are incredible but we are fragile. We are operating in a very thin shell which protects us but it is not crush proof, fire proof, crack proof so please stop testing it to destruction.

    Ok I have stopped shouting ahem. It is very acceptable to feel vulnerable, unsure, reluctant to poke our noses outside our front doors whilst wanting to do so many everyday things just to prove to ourselves that we can.

    Props are great. You can just stand outside your front door with a long handle sweeping brush, or pair of secateurs if you've got a bush. Don't have to really do anything. Stay for as few or many minutes as you like.

    Cheers 

  • Me too Sonia xxx

  • Oh yes, an update on Scooterless... well he got home Thursday to an awaiting letter. They are getting to be as useful as text appointments. Date and time at IIU. Err... didn't know what that stood for, no hint at what for or who with!

    Seems it stands for Investigation and Intervention, day unit. Stressy had assumed it was for chemo but my sleuthing reckons they don't do that.

    Stressy went to GP appointment with him today... Scooterless had heard that somebody knew somebody who had lost a lot of weight with injections so asked GP for them!!! Of course GP said no! I am annoyed however, that he was prescribed pills!!

    They failed to ask about anything sensible like what sort of wrist support would be useful!

    Scooterless took himself off to the bookies and bank on borrowed scooter this morning so is doing ok. Disappointed that he still needs drainage bag.

    Cheers

  • Evening again Shims Relaxed️ my tasks are almost done for today, then exactly the same again tomorrow. I'm channelling Bill Murray but not acting a part. I'd love a groundhog as they're so cute.

    Anyway, to your first post - yes ma'am, message understood.

    Well it sounds like things are ok as per Scooterless but I'm assuming mounjaro or the other one was denied so what are the pills about? xxx

  • Hello. Do you feel like a Hamster on a wheel?

    The pills ... remember before fat jabs were all rage? Diet pills were a thing. You could buy them OTC and were advertised on tv. Some GPs issued them. Scooterless mentioned them way back and I dismissed them with a 'they cause slurry, so no unless you want brown drawers all day.

    Stressy asked how today's pills work and yes they basically cause diarrhea... they effect the transit of food through your system.

    I would have thought getting his system working properly was the priority. What is the point of choosing kidney friendly, arthritis friendly grub if you chemically induce Poop ?

    Ok I have stopped.

    So how is OH other than mucusified?

    Cheers

  • I'm unsure if I'm meant to laugh or not, but laugh I did Rofl Laxatives are available OTC at all chemists if that's what was basically on offer.

    But silly GP. That's my final word on that, for now. 

    We used to have hamsters but they got off their wheels when they'd had enough going round in the same loop, the lucky little darlings.

    Mount Mucous has become dormant again after a final eruption around 10.15pm, and I've not heard anything more for a good half hour so I could be off the hook now.

    Fingers crossed Fingers crossed xxx

  •   I know you're lurking so come join in Slight smile I don't bite ... honest. ,

    Well I am sure the pills were meant to make you think somehow they were burning or melting fat! but folk complained of leakage!

    ssssshhh let's hope mucus mountain is dormant for now

     Cheers

  • Grrrr! Remember dog toymagedon? I eventually got the order accepted? Well after a couple of days I emailed to see if they could narrow the very generous delivery window. 

    48 hours to reply saying one of the two out of stock to them but I could go back and cancel off that item! By this time it was due to them the next day so I waited

     Nada! Tried ringing, 19th in queue! 

    I am beginning to suspect company may be in trouble as reviews previously praise quick delivery but now lots of complaints including dreadful customer service response!

    Who knew a dog toy could be so much bother!

    Cheers

  • Whispers* I think it is.

    Talks normally* I feel so bad for OH that normal emotions most of us take for granted, ie laughter, crying, getting excited over sports, can set off a chain of grunting, coughing and ultimately ejecting copious phlegm through his neck stoma almost every time he does those. 

    Moan over, I'm that way out tonight but will quit now.

    So Shims, anything on the cards for tomorrow hon? I've gotta admit the Boulder man is trying his best with my eyes and I'm flagging a bit now xxx