Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Thank you Jane. Slight smile  I do plan on going next week, if I possibly can. I appreciate your support with this Jane.

  • Oh that's ok Helen, I didn't know what it was until recently. I'm not sure if it's just a local thing to me if it there's more branches throughout the country. They've helped me a lot since I've been sick, visiting me several times when I could barely get out of bed, and phoning me now and then to check up on me.

    I wish I'd gone to this group sooner, but they told me today that it used to be only once a month. So I'm glad it's now weekly.

  • What does "played" been Gill? Is that your local lingo meaning "well played"?  Slight smile

    Don't take me wrong please Gill, I already have had good conversations with them. I regularly meet older people while I'm out locally and enjoy having chats with them. Younger people rarely seem very talkative, which is a shame but I understand it.

    Oh I always talk about diarrhoea! Teeheehee.

    Thanks for your support and all the encouragement Gill.  Slight smile x

  • Hi again.

    Yep, in our vernacular it means just that.  Hey, my OH and me attend an exercise group every Friday now.  It's really for him, to improve his mobility after his op, but I always join in too as it's fun.  Almost all are older than him but they're great and as you say, most younger folk seem to have a mobile welded to their hand and have lost the art of conversation.

    Anyway, a new chapter in your life and looking forward to future updates and more videos, of course!   Hugs pal xxx

  • Hi guys, 

    Have missed a few conversations but definitely no dunking of the biccies allowed in this house!  Lots and lots of gravy, but not on the Yorkshire puddings, I don't like soggy food either .  I love the wonky donkey picture Eddie .  Well done Geoff, I so wish we had some social meet ups here, there are loads but most involve heavy drinking which is not for me! 

    Gill, how are you and H today? I hope you have your sky installed now?  Great to hear N had his tube fitted, I really hope he and E are ok.  Where's D??  Also hope her and J are alright?

    Love and hugs to all xx

  • Hiya Sian and great to hear from you hon.

    I texted Nige and although he had a torturous time with the feeding tube initially, it's settled down and Ellise is enjoying getting to grips with it.  No further updates on other stuff as yet, but he sounds in a much better place, which is brilliant.  Aw poor Debs not so much; still grieving over Buck which is natural.  Jon's ok, so that's good.  We finally got Sky and H is on cloud nine as his rugby team is in action tonight.  His face lit up but I intend to read as it's not my bag - I'll just supply the treats.

    So that's our news and I'm hoping you and Darren are well. Nige asked after you both.  I don't blame you, not getting involved with the drinking groups; it's not much fun when you've knocked it on the head.  Anyway, just a bit of tidying up to do and then I'll get my book out.  Any plans coming up for you two, or relaxing time?

    Give those laughing doggies, Treacle and Sheep a hug from us and for both of you xxx

  • Thanks for the updates.  Please send Debs and Nige our love.  I really hope they sort this messaging out soon!!!

    We have been for Darrens ct scan today which is all a bit scary, it's the first one since the op and RT.  Now have to wait for the results which is always the worst bit as you well know.

    Hot and windy here today and still far too many people around but we went to the British shop and I have jaffa cakes with cola bottle jelly Yum omg!  Never seen them before and of course some ginger nuts which I love Heart️ xxx

  • Fingers tightly crossed for the results Siany.  It's easy to say but try not to stress hon, as nothing will hurry it along xx and yes, we all want PM sorted out.

    I passed on your love to N and E and Debs might come on later.  I would love cola jelly Jaffa cakes but I've never seen them.  I'll have to start looking. But now you're talking with the ginger nuts as they're huge favourites in our house. I've got a packet in the pantry but don't trust myself as I usually scoff them all in one sitting! My greed has no boundaries.

    Talking of greed, I'd better rescue the bacon, sizzling under the grill.

    Love and hugs to you both xxx

  • Hello 

    I have visited the thread a few times but this is my first contribution if it can be called that!

    I'm due later this morning to have pre-assessment before having my first dose of FLOT on Sunday. I'm not sure if that is why I've been up all night as usually I sleep well.

    If anyone is awake- what do you do? I'm already fed up of the TV and facebook. I had my PICC line put in yesterday morning and was told to rest the arm, no lifting, no over use of my arm for a few days so the option of doing the ironing isn't there tonight!

    So I'm sat with my thoughts, not generally an over thinker most of the time, I am more worried about the effect of this on others, my wife who is incredibly supportive (and up and down all night) and my mother who I do a lot for from twice weekly shopping to taking to her appointments- she's 86 and frankly terrified having lost my older sister 6 years ago unexpectedly, also my sons who are completely independent and own their own home etc but I still worry about them.

     I've almost completed my Christmas shopping in case the chemotherapy and following operation (if this goes ahead) knock me for six and I can't do it nearer December! 

    Just my thoughts in these early hours. 

    Laddo

  • Morning girls, just a quick hi from me before it gets light enough to take the dogs out and start my day Wave

    oh Sian, everything crossed my love for a good result from the CT scan … how long do you have to wait in Portugal for the results ? The waiting is torturous isn’t it Disappointed

    I hope you enjoyed your book and snacks Gill and H got the rugby result he was hoping for

    I dropped N a quick text last night wishing them both well and saying how pleased I was that the tube issue had been resolved, no response back yet so hopefully he’s getting some much needed rest.

    Another beautiful start in west Wales today, the sunrise is lovely. We’ve got a fairly busy day, tip runs to do (which we keep putting off Rolling eyes) and a friend to visit as her ex husband has just died and she’s devastated. They split many years ago but she had 3 gorgeous sons with him and he was the love of her life. She’s  been surprised just how upset she’s been. You may well of heard of him … he was the lead singer of The Foundations. He was 81 so having survived a horrific surgery for stomach cancer in his 30s and given a max 5 years to live … he did extreme well.

    Right with the tune of Build Me Up Buttercup going round in my head and a dog mournfully looking at me to take her for a walk …. I better start my day.

    so, not such a quick hi from me, lol Joy 

    Laters sweeties, love, strength and hugs as Nige would sign off with xxxx