Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Morning Amanda Sun with face 

    Firstly, I did get a decent sleep in thanks lovely, and woke up a short while ago.

    Your progress is coming on superbly, what with enjoying food more and hair regrowth, but it does take time unfortunately, and especially in regaining your strength. That's a biggie.

    Hey hon, OH lost 4 stone and boy did it show! He looked skeletal when he was lying in his hospital bed and lost so much muscle tone his legs resembled pipe cleaners. It's taken its sweet time, but since regaining weight his shape is just about back to what it was. Now OH was never Arnold Schwarzenegger but he's looking presentable once again. More walking is definitely on his cards!

    Aw hon, it's totally normal to be anxious about your upcoming scan, or as Uki says, scanxiety. It's doubtful that feeling will ever go away no matter how long you're on the treadmill, but the best advice remains - one day at a time. They come, the results follow and you deal with whatever happens from there. It becomes a part of life. Best foot forward.

    This isn't good news though. When I turned the telly on they announced a 6th heatwave could be on the way. Aaaeeeiiii!!! Haven't we suffered enough already?!!

    And calm. We'll deal with it if it happens but fans at the ready folks.

    Now you get yourself charged up for today sweetheart, and if Glyn's doing the cooking, enjoy! He could pass on some tips to OH Pray Here's a parcel of love n hugs, freshly delivered xxx

  • Morning Julie Relaxed️ 

    All the best for today sweetheart. We'll be thinking of you.

    Loads of love from OH and me - his balance is also way off kilter but Walter is on hand to steady him. xxx Heartpulse

  • Thanks Gill. I might have to think about getting my own Walter! xxx

  • Well done Julie. It’s the small victories. xx

  • The athletics have been amazing to watch. Absolutely loved it. xx

  • Good Morning. 
    I am glad that you are feeling better. 
    It is definitely normal to feel anxious/scared before an appointment. Good luck for your scan. xx

  • Hi, I’m terrified and just need support. Breast clinic yesterday and had all the tests / told is inflammatory breast cancer (the radiologist said too much consultant then had to agree and say at this appointment wouldn’t have told you) I can’t function eat sleep crying! Was awake till 5am! Im scared they kept saying aggressive and everyone online is bad! I’m now in limbo - not told my children 16/18 yet (they have exam results, starting new job, alsorts this week/ next) so sobbing in bedroom can’t get dressed can’t function! 
    doctors said prescribing me something to help sleep short term and meds for panic in day - does anyone else take anything to help this awful panic ???? 

    I feel I need a support network how do I find people I can message! Do people have local groups? 

  • Hello  

    A warm welcome to the Cancer Chat Group, although I am so sorry to find you joining us. I see you have already joined the Inflammatory Breast Cancer Group, and "spoken" with my fellow Community Champion "Codfish".

    This group can supply all the support you need online - as a bunch they have been through various cancers and treatments so you are chatting to people who "know and understand"

    On a practical point does your hospital (or one local to you) have a Maggie's. This is a cancer charity where you can just nip in have a brew and a chat.

    There's our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) - give them a call. they are brilliant.

    Breast Cancer Now have a Support Line on 0808 800 6000 (Monday to Friday 9am to 4pm)  web site breastcancenow.org

    Here's some other information you will find helps:

    Talking to Children and Teenagers.

    If you speak to your hospital team they will be aware of any local help groups.

    I hope the above helps, if I can do anything else for you please do get back to me.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thank you I don’t know if we have that but I’ll look up now. Thank you for your reply I’m just so scared. 

  • Hello  

    The diagnostic part of the cancer journey is the hardest part of the entire process.You have all the tests, you know you have cancer - but you don't know how bad it is or what treatment you will need. It's not my specialist cancer but I do know it usually involves surgery, chemotherapy and radiotherapy.

    Once you have a diagnosis and treatment plan - your anxiety levels will drop and if you can go into the treatment with a positive attitude that's half the battle.

    Keep talking to others, don't shy away from asking questions and with my cancer (Prostate) I told my wife and adult children everything as soon as I had all the facts. I found that if they know everything they know how best to support me. The six words on my strapline are from a badge given to me by my 8 year old grad daughter!

    Stick with us - vent here when you need to (it's better than at home) we KNOW what you are going through.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.