Awake and up all night

12.30 mri hopefully the last test I've had so many test in 10 days xx

It's like you've been caught up in a tornado, isn't it?  But after tomorrow you'll hopefully get a breather from the hectic flurry of tests, etc and be able to start coming down from it.

Hey, a short while ago, Annette was saying how Dr Google is very much out of date on a lot of the medical stuff.  I realised this and now I've served my time, googling every mortal thing, and have been released on parole.  It's liberating and now I only use Google for looking up recipes and such.  You should try it to stop your.mind going down scary rabbit holes.  I stick to reputable sites only now if I'm desperate for info.

I'm going to put Raven Reads on YouTube on soon and let her soothing voice tell me her latest selection of ghost stories.  Have you tried that?  I'd give her six out of ten for getting me in the land of nod.

Gill xx 

Good luck for today Julie!

Sending you hugs xx

Gill xx 

Thank you have a lovely day xx

• Had mri won't going to do it as the cancer is on my face open wound made by biopsy no 2 which has made my face much worse upwards and onwards xx

That's the spirit Jules - just keep getting these things out of the way and before you know it, you'll be on the road to victory.  I think most procedures tend to make folk feel worse before they get better, but grit your teeth and keep going.  If pain kicks in,  tell your CNS, if you've been assigned one, or your GP.  H's CNS is a Macmillan nurse and she's brilliant - making friends with her was a big step forward for us.

I've no knowledge about the treatment pathway for skin cancer but I guess there'll be similarities for all types.

Did you open the link Dani sent to you?  I can't remember if you said you had (head gone at the mo).  If yes, did you find others in your situation?  If not, go have a look - you'll receive a warm welcome when you find the group pertinent to yourself.  I've yet to find anyone on here who isn't kind,  informative and up for a chat.  Apart from the hospital side, you're in the right place in our community.

Let us know how you get on and remember, you can always find me here.  You're doing great!

Gill xx 

.Hi Gill, Good for you just googling recipes etc, it is great for that. It is also good to look up places 8n google Maps like Ice cream Parlours you spoke about near Barmston, I will definitely be looking that up. Maybe if anyone has been there recently or lives near there, they could let me know the name of it please.

Hi Julie, Nice to meet you but wish it was somewhere better than on the cancer rollercoaster! As Gill said, once the initial tests etc are done, things will slow down a bit. Then when you have a treatment plan, you will get into the routine of it in no time. You can do this!

We are up at 08.00 this morning as my husband has an appointment to find out the results of CT scan a few tests and to find out if six weeks chemo has worked. My cancer doesn’t respond to chemo or RT. I’d better try to get some sleep as it is already after 0.3.00! I do hope you are all asleep by now!

Julie, positive vibes coming from the Prostate group!  I know it feels like all you ever do now is have tests.

We are all here for you!

Hi Annette,

All my very best wishes for today and I really hope the news will be positive.  Everything crossed for you both.

The ice cream parlour is called Mr Moo's at Skipsea and it's still open for business, I hope!

Sending hugs, lassie.

Gill xx 

Thanks Gill, how could I forget Mr Moo’s?. That’s great, we will definitely go there!

Vince, my husband, had a scope this morning. They said the surrounding area of the bladder looked clear but the wound where they removed the tumours still had a crust over it so they will do another scope in 2 months & by then they should be able to see area properly. They said it was a large wound so it is normal for it to take extra time to heal. They apologised saying they ordered the scope for 6 weeks rather than the usual 8 weeks in the hope they could give us good news before our holiday. I said, no news IS good news! Onwards we go!