Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Morning Helen have a safe journey home I hope the traffic isn’t too bad xxx

  • Glad things are looking up. Dehydration is a weird situation.

    Long before all this dry, hot weather malarky I became unwell going to meet Stressy and Scooterless. Ironically I felt better that day than I had for weeks and did nothing differently to any another day. 

    I became very ... OK stick with me ... like I couldn't stay within my body! Just about arrived, having alerted them to come outdoors and meet me and sat down but had to keep jiggling my knee to stay present. I actually felt like I may be dying as systems seemed to be shutting down, I couldn't feel limbs, really had to make an effort to breathe, couldn't remain sitting upright, very dry mouth and lips... ambulance arrived and were confused as my readings appeared ok ???? Whipped to hospital and many hours later after IV fluids and many tests etc the most they came up with was dehydration and low hemoglobin.

    I was velcro'd to a bottle of water for weeks Slight smile

  • JoyJoyJoy

    That’s brilliant. xx

  • Take it easy. Get plenty rest. So glad you got the district nurses out. xx

  • Thank you so much kez. Feeling better today. I know it sounds awful kez but I had a catheter in for a week after my operation and I couldn't wee for 3 days. I was so happy when I had a wee.. sending hugs and love to you.xxx

  • Hi Unknown, welcome to the group.  I agree with the others, don't self diagnose.  You sound like you've scared yourself something rotten! Your symptoms could be something else or could be nothing at all but for sure, the quicker you see someone,  the quicker you'll know and can do something if needed and put your mind at rest.

    I was diagnosed with myeloma in March (a type of blood cancer) and knew nothing about blood cancers. What I know now though is that there's loads of different treatments, it's not a death sentence and early diagnosis is the best. I was also told NOT to look on the Internet as it's all out of date and lots of nonsense out there.

    You sound like a strong brave person (I'm presuming a lady) so get those big girl's pants on a call the numbers  said or get an appointment with your GP. 

    You need to do it for your kids. Sorry to sound harsh but the only person to sort this out is you.  We're here for you and will nag you until we hear you've made that appointment!! Sending all my love and lots of positive vibes. We know you can do it lovely.  We're here for you xxxx

  • Afternoon Sonia. When one's personal plumbing gets blocked or does not work for some reason it soon gets extremely uncomfortable. After 3 days, that must have been painful, apart from the risks of kidney damage. Catheters are not much fun but at least they ease the internal pressures. 

    I've had the bloody things continuously since late 2018. Mine are Foley, urethral and can stay in place for up to 12 weeks. Catheters can block quite easily, so they often have to be replaced much sooner. I'm on an 8 week replacement schedule now because that's about the longest I can keep the damned thing flowing, even with DIY water or dilute citric acid flushing (all approved by my GP and Urology). This morning I was dismayed to see that I'm running mildly pink again, hence the use of the word 'bloody.' Dear champions, I was not swearing, honest!!!

    However, the thought of your 37 staples and major surgery makes me realise I'm lucky. How are you today Sonia? Recovering well, I hope. Hugs are in the post. Use them after the Muller Corners.  Ray xxx  

  • Hello, and another warm welcome to the group. You need to make an appointment with your doctor. Sending hugs. xx

  • Hello. 
    I am glad that you got Dad home. Safe journey. xx

  • Thank you Kez. That's a comment I never received on my school reports. The usual flavour was 'Could have tried harder.'  They were wrong of course. They should have said 'Could have tried much, much harder.'  xx