Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • I've not had any problems with the forum posts today. I expect someone at the border post has accidentally put his chair leg on the Yorkshire input/output wire. 

    I use sticks because I have osteoarthritis in both hips. The painful stage somehow stopped several years ago. However, there is so little movement available in both joints that walking,  stair climbing and even sitting in a normal dining chair is difficult. Ankles and knees are fine. With so little movement in the hip joints, I can't move my feet far enough to safely maintain balance unless the surface is very flat and there's no gusty wind. Hence the sticks are used to prevent me falling over. I can only manage 1 or 2 small paces without sticks. It feels so precarious that I just freeze until I have something to hang on to. I have a wheeled walker for longer walks e.g. in hospital corridors and at home I am increasingly relying on hospital issue zimmer frames, one of which has a tray attachment, handy for getting food from the kitchen to wherever I sit to eat. I've used a mobility scooter since the mid 1990s for local trips if I can't be bothered to use the car. OH is doing well to keep some mobility after all he's been/still going through. The worst aspect is it makes me feel like a 90 year old rather than 76.  xxx   

  • Ray, I really shouldn't but I always start laughing at your posts. I promise not at your mobility issues but at your first paragraph, which was intentionally funny, but then carry on grinning throughout. I think there's something up with me.

    Well you and OH are alike then, cos from behind he looks 90! I keep asking him to straighten up, which he does for a minute, then he stoops again and it's like he's become old father time. He promises it doesn't cause pain to stand up straight so I'm at a loss. Is it just laziness or the way he was brought up, to gain attention? Hmmm.

    I wonder where Unknown has got to as I found a number that might be helpful xxx

  • Welcome to the forum Unknown. Are you in the UK? If so, Gill has given good advice. By contacting a GP, phoning one of the helplines on here or the Samaritans or visiting A&E you can take the first brave step to reduce the scariness and begin appropriate treatment after diagnosis. This will be the best way to have as long as possible with your young family. None of us on here are medically trained. We all rely on the highly skilled miracle workers in the  NHS for our cancers. On here, we try to give moral support. Other types of support e.g. financial and home visits are out of our scope but we may be able to point you in the right direction if you are UK based. Best wishes and good luck. 

  • Ray, I'm going to try for some sleep now hon. Try and get sorted with the palliative thing lovey.

    Night night and sweet dreams xxx

  • Gill, I'm going up to bed soon, possibly via the toaster and some Marmite. I'm not really tired yet. I have tried flapping my arms but can't hear them. Perhaps the owl feathers grow later.

    I'm pleased if I can raise a smile from you now and then. As I often say to my friend, Brits are very good at self defecating humour Laughing, so laugh or smile whenever you want. I don't mind at all.   

  • Our posts crossed but I laughed again Smile 

    Night hon xxx

  • Morning. Typical, I try to sleep when someone new is desperately trying to to reach out for a bit of reassurance. Thank goodness folk were around and tried. 

    Sheesh rugby on TV already. Right, had some sleep eventually yawwwwn ahem. Off to make a brew in a minute after a quick shout out.

    Cheers

  • Good Morning Shimmer Wave 

    I'm going out for a couple of hours in a bit, but just to wish you a great day and watch those injuries - no tripping up or anything daft.

    Big hugs hon, and see you later alligator Crocodile xxx

  • Hi, are you still around hun? Do please keep talking to us. 

    Tell us a bit about yourself. Do you live in the UK? How many children do you have and how old are they?

    What happened to your nan was very traumatic for you, a huge shock and I am sorry you lost her in such difficult circumstances. 

    I know you are very worried about your health. The symptoms you describe could be all sorts of things and without more information we don't know what you are dealing with. 

    When did you first start to worry and feel something isn't right? When did you last see a doctor?

    I know you are fearful that cancer is a possibility but are doctors telling you this is something they are investigating?

    That's a lot of questions so I will give you some time to reply. 

    Hope you pop back to chat

    Take care

  • Morning all 

    Too many posts to read this morning. 

    We got Dad home at about 7pm last night after an IV fluid drip. The scan was clear and they think dehydration brought on the seizure. He was much better by the time we left the hospital. They were great with him. 

    We're heading home today after taking Mum shopping, it'll be a long journey.

    Hope you're all ok this morning.

    H