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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Thanks Gill (Gill H )
The one thing about our cancer is that dignity goes out of the door and never comes back.
I have at least 2 stories I can't put in writing but I use if I am doing a live meeting with people who are just starting their journey.
I did a blog some while ago - I don't know if you've all read it but here's the link:
‘Cancer can’t take my sense of humour’- Brian's story
(part 2 is half written)
Last year I managed to get the word "Todger" into a live Macmillan Internal Staff Broadcast - funny enough had to pre record this years - I wonder why?
It's life, it's reality - I am happy to get my kit off nowadays for anyone!! .

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
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Yes, I agree. It's the mis-information and the thought of being naked in front of strangers.
During all my visits to hospitals and clinics the staff in the NHS have been amazing - all you have to remember is they do it for a living and see all your "bits and bobs" along with everyone else's day in day out.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Great work Brian, and I'll read your blog as soon as I've replied to the essay my sister's sent by text - she's another who never knows when to put a sock in it. My big brother's the same, it runs in the family.
Aye, OH's coyness is long gone - mine left the building aged 21 when I had my first baby. Embarrassment and me got divorced on that day over 46 years ago - mind you, I'm not sure if I had any before then!
If all you do saves just one guy from getting prostate cancer, then you've done brilliantly, my friend xxx
Hi hon
Yes, it's scary waiting for the results but thankfully OH was in the clear on that one at least. He still had to wear a catheter for several days and had bladder scans, but it turned out to be a UTI. That's when I made sure he got tested, and good to know our Uki's on the ball. Ooh, matron xxx
Hello Gill (Gill H )
It's a strange one - I joined the Community for support - even though my wife was a nurse most of her life, but I am a nerd - I like to know things and I found people on the Prostate Group friendly, knowledgeable and I was welcomed just like you lot do on here.
After a few months I found myself answering posts from others and found I don't want anyone to be in a dark place (not knowing) like I was after diagnosis.
A couple of years in I was asked to do the Champs job - yes there's training (ongoing too) but the support from the Team is ace and I have plenty of back up and resources - but it's taken me a couple of years to be confident across the whole Community.
I do bits for Macmillan off the Community - I do bits for my local area and spread the word. I always have a Prostate Cancer UK badge on. I also have plenty of Prostate Support T-Shirts too. The other day I was walking the dog and a man came up to me - he had seen me in the park wearing a T-shirt that said
"Prostate Cancer Messed With The Wrong Cock" - and sure enough it's got a picture of a chicken on it.
That made him go for a PSA test and now he's on treatment. Every egg a bird!
If all you do saves just one guy from getting prostate cancer, then you've done brilliantly, my friend xxx
I know I am well into double figures. Men need a testing programme.
Kind Regards - Brian.

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