Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi Ukiboy and ShimmeringUnicorn it is a difficult thing to start as it is all totally ailien 1st chemotherapy was 100% last 2 have been 80% but i had a rare side effect of a tingly tongue so my oncologist is reducing my cisplatin this time and leaving etoposide at 80% to see if that helps. 

    I dont know about anyone else but worst thing is the fatigue it seems to get worse each cycle. 

    Amanda 

  • Hi Amanda, and a warm welcome to our group Relaxed️ 

    It's really good to hear that you've got to grips with your treatment, sweetheart. Has your sleep pattern improved too? Kicking the insomnia into touch would be a definite bonus!

    Hope you can enjoy the rest of your weekend and take good care xxx

  • Hi Amanda welcome to the group. I hope your treatment continues to go well.

  • Afternoon Sonia, I hope you're doing well today hon.

    I wish I'd never mucked about with my phone as it's causing all sorts of problems now. There's always a delay with posts but now I've seen Amanda's latest one it's clear she's suffering from fatigue now.

    I don't know about Prince, but when OH finished his 6 weeks of RT it was like living with Rip Van Winkle he was that fatigued. I just let him sleep but it might not be that easy for Amanda. 

    Hugs my lovely xxx

  • Afternoon Gill. I get a delay with posts. Sometimes I don't get them at all and then I feel awful because I haven't replied. Yes prince was very fatigued with chemo and radiotherapy. The treatments are harsh for cancer.he had 6 weeks of radio and chemo. He could only manage 4 of the chemo. His white blood cells went too low so he could not fight infection. Hope Amanda is managing hers

    Best wishes to you and OH hope you have a lovely weekend.xxx

  • Thank you hon, and we'll do our best.

    Maybe your post will help Amanda, and it's very common for patients to be taken off chemo before their prescribed doses are up for many reasons.

    That's just how I feel about missing posts and hope others don't think I'm being ignorant or just barmy. Anyway lovey, I've got a busy hour or so ahead so I'll clear off till I've got done.

    Laters sweetie xxx

  • Hi Amanda I hope you have read my post to Gill about my son going through chemo. The fatigue wears off with chemo when treatment finishes. If you are having radiotherapy as well it lasts a bit longer. Good luck and keep posting on here.xxx

  • Such a beautiful photo. Very calming. x

  • Hello everyone. 
    Sending all my hugs and love to everyone who needs it today. You are all amazing. xx

  • Hi 

    GillH and Soc 

    Thank you both. 

    I am pleased to say yes mainly the insomnia has settled some nights i wake up at about 3 to use loo and takes ages to go back to sleep but no where near how i was the first cycle. 

    Im an early bird anyway as my daughter and her son our grandson lives with us abd hes an earlier riser lol. 

    I am having my 4th cycle on tuesday, 2 more to go then. 

    May i ask what stage you are at if you dont mind me asking. 

    Amanda