Awake and up all night

Why aren't they giving us proper help l cant understand it the consultant  is a pig to be honest only the GP has reached out.

But hubby doesnt want to go back to hospital and is even telling little fibs to doc about how ill he is, I'm trying my best to keep him at home. They even have give me the auto immune jabs to give and I'm needle phobic but I'm doing them.

Is it common to feel overwhelmed 

Thinking of calling GP out tomorrow as 999 will take him to the infamous Morriston hospital and I'm not sure he'd fair well there again

You don't have to go to the Morriston love, as you're at liberty to choose which hospital you want him to go to. If he's happier with Singleton then get him there. No excuses or fibs from hubby, you take charge xxx

Dingg, wise words from Gill. I'm not surprised you are feeling overwhelmed. They seem to expect you to be a saint, magician and a senior nurse. You are doing incredibly well under such pressure. To protect your sanity and enable your hubby's medical care to continue, please call your GP, a hospital contact number if you have one, or 999. Hubby may be reluctant to leave home but it does sound as though he needs a bit of a tune up (urgent medical attention) to reduce suffering from the worrying symptoms. I'm crossing everything that you both obtain help. Once hubby is being examined and medical treatment administered, see if you can get a prognosis from a qualified consultant or doctor. Financial help is usually available if they are not too optimistic. In my case, although medics thought I would not last long, we did not get to complete a form. Then someone answered my prayers and I blew my chances by slowly recovering. This was in 2018. This is a potentially sad, intensely emotional time that you are facing. You and hubby deserve help. I am trying to channel my best well wishing vibes to you both, and extra energy to you to do whatever you think is best. Ray xxx 

Same here Ray. I really hope they get some help soon but can't for the life of me fathom what the medical lot are playing at. Sheesh.

There's been a few occasions when I knew OH's issues needed swift attention, so by calling an emergency number I knew the paramedics would turn up with their equipment and quickly check his Obs, then they would make the decisions to get him to hospital. I just wanted it taken out of my hands and I'm glad I made that decision.

Anyway lovey, hopefully Dingg's got something sorted now so I'm going to try for some kip. Hoping you will soon too, so night night hon and sleep well xxx

That's amazing Ray 

We are hoping that he can turn a corner.

I got so stressed I realise l can call the oncology ward 24 hr line. We called it last night as he reacted to the auto immune jab.

He's soundly sleeping now and we  managed toilet emergency with washing up bowl. Will ring them as also if hes got less mobile will need to get him in car Thursday for out patient drain.

The only uplifting moment was before l thought of the washing up bowl l grabbed the gerry out of the cabinet and survived the Blitz and he said l cant get my arse on that oh well. At least that was a slight stress relief. Hope he can get better maybe auto immune drug is irritating him.

Will go call x

Hope things ok there tonight Ray xx

Definitely call Dingg,caring is incredibly stressful and you should be getting more help and advice.It’s also lonely and overwhelming at times.I don’t think people truly understand unless they have been a carer themselves.I hope you can grab some sleep.Let us know how you both get on.love Jane xx

Hello Jane, I hope you are ok and just being a night owl. I'll have to go upstairs soon to flush my catheter as its tending to block every few minutes.

I saw your post regarding Travelodge blue. I went through a quite pleasing blue phase a few years ago. This year, although I'd have been happy enough with neutral colours i.e. boring magnolia, my daughter was acting as decorator and insisted I chose an interesting colour. I'm pleased with the pale, slightly slate tinted green in the hallway, landing and stairs. It is relaxing and fresh. The dining room has turned out better than I expected as well. It is a pale shade of lilac. I was worried that it might have looked too pink but it is firmly in to the subtle purple shades and looks nice. I admire you tackling your decorating, plus gardening. Both are hard work. If my daughter had not volunteered, I'd still be sanding the skirting boards in 20 minute stints between 30 minute tea breaks. Somehow I feel that you are more productive and do a lot when the weather is cooler and you have energy available. Ray xxx. 

Hi Ray,Sorry your catheter is blocking again.I haven’t been sleeping well lately.I fell asleep watching an interesting crime prog but as soon as I got into bed was wide awake.Next door will wake me in the early hours shouting out,poor man I feel for him.Good to hear the decorating has gone well.It’s going to look great with the new carpets.I’m probably going to order some paint today.If I can get my office painted that should help with motivation.Better try and get some rest now,I hope you can get some sleep too.Love Jane xx

Good Morning Dingg 

You have had some sound advise overnight from the fantastic members of this Community and I hope everything is going well this morning.

I actually burst out laughing when I read this:

Dingg said:

The only uplifting moment was before l thought of the washing up bowl l grabbed the gerry out of the cabinet and survived the Blitz and he said l cant get my arse on that oh well

I had a vision I didn't want - then I thought - what survived the blitz "the gerry or the cabinet" or both. Then I wonderd if my children would even know what a "chamber pot" was, never mind a "gerry".

Kind regards - Brian.

Morning Brian ️ 

That quip had me laughing too! Don't know about you hon, but the first several years of my life required an old-fashioned china potty, or po' as we called it, parked under the bed. The joys of indoor bathrooms!

I'm hoping Dingg and hubby are in a far better position this morning, and hopefully she'll get back and update us when she has the time. Hoping you and yours are good and give the gorgeous Ryder a fuss from me xxx