Awake and up all night

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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

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  • Have trouble sleeping and looking for somewhere to talk
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  • Thanks I've been up all night changing the stoma bag it was rubbish of the doc to think it would stop.

    I just cant cope but am l being silly not to cope.

    He's in a chair and he can't climb and is very unsafe in his feet how he passed step test l dont know 

    He says he doesn't want his meds when we start the feed in the morning. 

    I just don't think l can keep him safe as he cant really walk.

    If l ring the ward so far they never answered do you think l can take him in so they can sort the stoma bag 

  • Hi Dingg. Yes, if you can manage it, get him in. If he's refusing meds then things aren't going well.

    Whatever you do, don't think you're being a nuisance or a nagging wife as you've got to think about your hubby, not them. If you can't get him in the car safely, either call a taxi or even 999. You do whatever you think is best, but if it was me and OH, I'd be getting him straight back to hospital and no argument.

    Go for it as things aren't going to improve much by the sound of it sweetheart.

    Hoping you get the result you deserve, and throw the ball back in their court as it's what they're paid to do. Lots of love hon xxx

  • He's only had a small wee since yesterday afternoon which doc said was a sign if the discharge got more and the wee less but hes very instead on his feet and says he could climb the stairs but wont and hes unsafe to do by looks

  • Sorry to hear about your surgeries, I hope you're on the road to recovery. You've found a nice group here to chat to as much as you like about anything and everything. 

    H 

  • Well done on the injection and scan. 

    H 

  • Morning Dingg

    I'm with Gill and would suggest calling 111 at least for advice. If they think he needs more help then they'll send an ambulance.

    H 

  • So sorry Dingg, this post has only just come through to my dodgy phone.

    If hubby's only passing small amounts of wee and with large gaps between, it's a sign of possible infection. Also, being unsteady on his feet all contributes to that. I really think you should call 111 if the hospital's still not answering your calls. Don't delay too much love, for your own peace of mind and hubby's safety xxx

  • Morning Helen Blush 

    Poor Dingg's going through a rotten time and I hope she gets some swift help for hubby. Blast my silly phone - no alert at all when she posted yet it pinged when you did. Then I saw Dingg's post was an hour ago. I've been awake the whole time watching the telly!

    Anyway lovey, hope you've somewhere special planned for today xxx

  • Good Morning  

    I am so sorry to read your latest posts.

    I am in total agreement with  and  

    It would be ideal to get him to A & E but if you can't manage that then call 111 - tell them his recent history and they should organise transport back to hospital for him.

    Best wishes - Brian.

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  • Morning Dingg

    I’m just astonished that your poor hubby was discharged with no care plan and on the basis of being able to do 2 steps.

    I know myself I was desperate to leave hospital so forced myself to get through the stairs test, but that was up and down a whole flight and it nearly killed me.

    I hope you have got some help since you posted-the critical thing is your hubby is not safe and that’s absolutely not a reflection on you. Caring is difficult, scary and sometimes it’s just too hard without extra help. You need help, and hubby needs to be safe. Those are the priorities. Please let us know how you both are when you can.

    Sarah xx


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