Awake and up all night

thank you so much gill.my phone has blocked me out again so am on my laptop. thank you for letting me know about ukki he is a lovely man. i have had 2 muller corners today.my son is good to me bless him he wont take amy compliments. hope OH continues to improve. sending big hugs to you.xxx

What a fabulous girl Nyx is Sarah, and she's got amazing eyes. I bet she rules HER house.

You have a lovely birthday on Monday, and definitely treat yourself to a slice of cake and a tipple. That's what birthdays are for - a bit of indulgence. Big hugs lovey xxx

thank you sarah. i was the same. they said i will be radioactive till midnight. love the picture of nyx she is beautiful.xxx

Thanks lovely  OH seems to be on the mend but I hope he doesn't relapse! The heat isn't really helping so I've been trying to keep him cool.

Your lad sounds smashing and you've done a great job with him xxx

Yes l know its true, l do believe cats can be guardian angels, its unconditional love ️ 

Thats all true but hes home this evening,  I'm stressed but his mental health was going down hill at the hospital.  There's no care plan and they took sutures out just before we left and then fitted a stoma bag its very stressful as l have to get up through the night to empty it. They knew he leaks fluid after chemo but they didn't seem to have a clue said it would stop but it hasn't. 

He passed the stairs tests which is step up 2 steps but now hes home he cant climb the stairs. I don't know what to do really, hes in a chair down stairs 

All the emergency numbers are just answer machines so that was all lies as usual.

No words really, l am getting through but its too much really but he couldn't cope in the ward

Yes thats true she's beautiful,  Hope all ok with you Sarah x

I'm having a difficult time as hubby home but needs a lot of nursing care and they didn't offer any help. But l felt l couldnt say no as hubby was going downhill mentally after 7 weeks in hospital x I'm ok but just hope l feel bit better tomorrow x

Thanks James sending hugs x

Hi Tanyay,

This is the worst bit, waiting. Sorry l didn't see this last night.  You're not alone on here, secondly for young people they respond very well to treatment as you found last time. Sorry to know you've been through all this.  Your message has disappeared but wishing you well and also changes in stats and tests can have loads of reasons.

Hope things improve you can get through this. But on here there are plenty of folk to help sending hugs x

Dingg, sweetheart, all I can suggest is that if hubby goes downhill, and you really don't know what to do, call 111 immediately for advice. In fact maybe do that now and tell them everything you've just told us. If they deem it necessary they should refer you straight through to an emergency call.

I totally understand about his mental health being under duress after his lengthy hospitalisation, as OH became institutionalised after so many months and it's affected him mentally to this day. I had no option as he needed very specialised care, but I think hubby does too and it was remiss of his hospital to discharge him without fully training you.

I'm definitely not having a go at you love, but you'll soon become exhausted with it all. If you're still awake, I'll talk to you however long you want if only to give you company so you're not alone. In the meantime, call one of those numbers again and if someone answers, tell them you're finding it difficult to cope.

Best of luck and remember I'm here. Love and hugs xxx