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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
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Thanks so much Sonia TLC took longer tonight with all the extras. I feel sorry for OH that I have to do so much for him now, a lot of it very personal care, and he must feel emasculated. I'm forever on my toes trying to make sure he doesn't feel that way.
Sorry hon, I was thinking you knew he was mute. It's because the tumour on his larynx was so large the only alternative was to remove his voice box, along with quite a lot of other things including his Adam's apple, leaving a hole in his throat. That's why his care involves making sure his stoma stays healthy and a silicone tube needs to put in situ so he can breathe through that. His nose and mouth can't do that job anymore, so his lungs are also compromised. There's a few over on head and neck who've had TLs.
Coping is the name of the game and all of here, both patients and carers, do a fine job as far as I know.
Anyway, how are you feeling now lovey, and will you be seeing Pat or your family anytime this week? Don't stay up too long if you feel sleepy sweetheart xxx
I think OH is very grateful to you for keeping him clean and comfortable. I did alot of personal care and I tried to keep them laughing while being as discreet as I could. I have been on the phone to my sister who has just had a replacement hip. She is doing well and my sister in law in London. I saw pat last week she is getting better than she was.xx
I'm so sorry Rose. The other week friends came round to our house. Some were positive and put a good spin on it to and that's great. But one friend looked at me and said "It's shit". I replied "It's shit on shit'. It was totally honest and unguarded. But Gill is on the money when she says it's what we have now and my mourning for the past is not going to change anything. As most people know on here I find it very difficult to keep my feelings buried. I can totally understand you feeling down given what you are going through. Try to keep feeling upbeat but also know that it's ok to rail and rant against this thing and be honest about what you're feeling. Everyone on this group has been so kind to me when I have let rip and when I 've told everyone I feel guilty for moaning, they've told me off. Tell us how it makes you feel. It might help someone who's feeling that exact thing.Loads of love xxxx
I'm not there yet, Uki the anger is still bubbling away and very near the surface. I sometimes explode and there's only poor OH on the receiving end, unless his mother's here and she's usually the cause. Awful stuff, but I've always been volatile and I'm trying really hard to rein it in.
A saving grace for both of us is still being able to laugh at things - without a sound in OH's case which must take some of the pleasure away, poor lad.
I hope you're feeling a little better now lovey. Lots of love xxx
So sorry to hear you are in pain Rose. Hope this gets better soon. Sorry we haven't met. Sending big hugs.xx
Evening Rose
Don't worry hon, I'm not going to say you'll be fine as you clearly don't want to hear any of that right now. Only you can know when that will be.
What I will say is I wish I could take away your pain, but I can't do that either and just pray it will become bearable for you, whenever that will happen. I agree with Uki that this whole thing is shit and wish it could be wiped out, but it's happened and can't be undone.
And on that cheery note, please look after yourself Rose, and don't appease others. They obviously mean well but it's not happening to them and it's more than ok for you not to be ok. Sending you lots of love and sincere good wishes sweetheart xxx
Hi Gill,
Sorry to know you are going through it again.
You have really helped me and l hope l can reflect that hope back to you with my reply.
I do feel shock this week l was telling ukiboy. Also grief l think. Hubby should be coming home but the blood sugars are rough so they cant release him with them 27. Its confusing really as to what they can do, they are trying many angles with the spacing of the feeds.
Sending hugs xx
Hi Soc
Not sure if l replied, my message seems to move around.
Thanks for that l am doing too much l know and feeling extra off really with this stupid menopause makes me anxious before you start
Sending love and hugs and hope u ok and have a sleep if you can xxx
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