Help

Hi Welshy82 

I also should say you could contact the Macmillan team on here for some emotional support for you, they may still be doing the 6 free sessions.  Plus you could join the forum on here that's specifically for carers where you will find others in your situation hon xx 

Lucy x

Don't be sorry I always appreciate honesty I'm the same well today I went into the doctors and they said he doesn't need palliative care yet he's phoned Marie Curie nurses to look at him but she said that Macmillan nurses should be looking after him? I don't know where to turn the only thing I can think of is going into the McMillian centre by me hopefully they will do something.i had a reply off pals they wanted his details his dock thinks that he's up and about but he's not he was up for an hour today and said he felt strange and he felt like death he needs blood tests and scans to see if it's in his lungs he's struggling to breathe and he's never smoked its really difficult because everyone is telling me to contact different people thank you so much for your help and advice I really appreciate it xxxxx

Hi lovely,

You could really do with just one person co-ordinating all the support. I'd try the Macmillan team (they can be brilliant at organising all he needs) first plus chase up him getting some bloods done.  Even if the docs aren't treating the cancer they can do bloods etc to see if there's things to ensure his comfort.  To be clear- Marie Curie provide physical care with carers plus nurses and used to do just night at shifts only but Macmillan nurses (funded by Macmillan only) visit, assess, give support and liaise with his GP giving recommendations to them as GPs are not palliative specialists.  Palliative care is for now, it's for when a person has a disease that can't be cured. You don't have to be actively dying to get it. It can be available to him right now so your GP is wrong!

Community palliative care can be provided by a local hospice team , the nurses will advise and often there's a team of carers to help with any physical care when it's needed. Hope that's clearer. 

Local Macmillan first plus bloods - get the blood taker to come to your boyfriend not him to them !

Good luck xx

Omg I'm so sorry I just accidentally pressed flag I'm so sorry xxx

I've just done that on my own post!

Hi Welshy82

Don't worry about it.  It's an easy mistake to make.

Daisy53 xxx

I didn’t know how to undo it x

afternoon I went in to speak with Macmillan today she said she can’t help because he’s not being treated in Wigan so I phoned the doctors he’s phoning me later it’s a really bad joke all this hopefully he will do something he’s a lot better than the other doctor he needs his bloods done and another mri because I think it’s either pushing into his lungs or has gone onto his to them he’s out of breath just talking it brakes my heart because he’s not told his mam yet I know it’s going to kill her he’s the only family she has xxx

Hey I thought I’d let you know that I had no luck with pals and the Macmillan lady she said she can’t help because he’s being treated in Leeds so I phoned his old nurse in Wigan and she’s sorting help out for him I popped into the doctors today to pick up the ds500 form and the receptionist seemed concerned about me I’ve lost 13lb I’m only thin as it is she’s getting me a councillor 2bh I’m not sure I need one all I want is help for my boyfriend xx

Hi Welshy82

Sorry to hear that you had no luck with PALS and the Macmillan lady.

I'm glad to hear that his old nurse is sorting out help for him.  While it's completely up to you I think that you might find it useful to  talk to somebody about how you are feeling about the way your boyfriend has been treated up now, I think you will find it some help.

Best of luck whatever you decide to do.

Best wishes

Daisy53