Hello everyone,
I am new here and am looking for a place for encouragement and support. My journey started back in Jan/Feb 2026 when I felt a rather large lump in right breast. Mammo in April was inconclusive, diagnostic mammo and ultrasound in May were inconclusive and just showed very dense breast tissue. MRI with contrast in June showed areas of concern. Biopsy in July showed positive for invasive lobular carcinoma in right breast, ER+, PR+, HER2-. The waiting game was awful. I had a bilateral mastectomy (on left as prophylaxis and right because of size of area) and 4 sentinel lymph nodes tested. Margins were negative for carcinoma. 1 came back positive for cancer so additional lymph nodes sent for testing. Pathology results show 5 lymph nodes with macrometastatic carcinoma and 2 lymph nodes with isolated tumor cells. I meet with my surgeon in 2 days to discuss these results and further treatment. I just turned 40 in November and my mammo from 2024 was clear. I am scared. I am married with 2 young kids and am so scared this has spread further. Anyone with a similar diagnosis that can give any advice or encouragement?
Hi PinkPathES
I am sorry about your diagnosis. I don’t have the same breast cancer (mine is ductal and triple negative) but I understand the anxiety of worrying that your cancer has spread. I hope it hasn’t. I think from your spellings you might be in the US, so working with a different health system to many of us here (we are a UK based charity). Treatment protocols are probably similar, so I think you will find many people here going through similar experiences.
We have a forum that isn’t limited to people under 50, which is a lot busier than this one. Many of the users are under 50. You might like to join it and post there when you know some more. Breast cancer forum
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I have metastatic Triple Negative Breast Cancer, in remission
