My autistic daughter 41 has breast cancer lymph node and liver Mets.

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My autistic daughter has breast cancer with lymph nodes and liver Mets. We are shocked that the cancer has spread so quickly. She hadn’t noticed anything until the lump was quite large. We are seeing oncologists soon for the treatment plan possibly chemotherapy. She is terrified of what lies ahead. 
I am not sleeping thinking the worse but I’m trying to be strong for her. I’m afraid what the oncologist is going to say of her prognosis. 

  • Sending u so much love right now. I’m Austic adhd and just had breast cancer op it’s the worse thing ever how did they no it’s on her liver already? If you don’t mind me asking is the breast cancer Her2 or genetic or hormone driven this all depends on what happens first. My advise get clear communication stress your daughter is autistic and get all the support.  Xxx

  • Hi  

    I am sorry your daughter has breast cancer with liver mets. I can understand how challenging this must be, especially to navigate with autism. The oncologist is unlikely to comment on prognosis as there’s no way of giving a single answer to this. Stage 4 breast cancer isn’t curable, but it’s often treatable. People can live a long time with normal lives with modern treatments. I had liver mets in 2022 and am still here and am well. So a lot will depend on what type of breast cancer your daughter has, the extent of her mets, how she responds to treatment, her underlying health. I have a friend who has been living with stage 4 cancer for over 10 years.

    You might find it helpful to join our thread on neurodivergence and cancer. community.macmillan.org.uk/.../neurodivergence-and-cancer

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    I have metastatic Triple Negative Breast Cancer, in remission