Just turned 40 with triple negative inflammatory breast cancer

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Hi lovely ladies!

I'm Sophie, turned 40 last month, and found a lump in my breast 2 days after.

I'm a single mum of 2 gorgeous boys (9 & 5), have just got my life into a happy place after 4 years of divorce with a man I love (now fiance), a wonderful family balance and a job I love (at my kids primary school).

My lump has now taken over my whole breast and I start aggressive weekly chemo next week. All of this has been too quick for me to process (but, in the same breath, HUGE love to our NHS for the speed they have acted). Because of the risk of infection at my workplace, this means I will have to step back during my year of chemo. Alongside this, I will likely be thrown into full menopause. 

I have so many worries, and I know I can't control them, however my biggest fear is: who am I going to become once I get into chemo? My boys are everything to me. We've formed such a close bond since the divorce and they are my life. I'm petrified. I've tried to be honest with them, but the unknown is too much for me. Once minute I'm totally fine, and my usual, bubbly self - and the next minute the reality and the looming date of potential change hits me. 

How do people cope with this? Are there any other single mums out there with this? Xxx

  • Hi im tripple negative and commenced chemotherapy and immunotherapy 3 weeks ago

    I am still working from home and taking each day as it comes so i would say you do that too  

  • I am not a single mum nor am I under 50 but I do have TNBC. Metastatic in my case, and I have experienced everything that can be thrown at TNBC. I just wanted to reassure you that treatment isn’t necessarily the horror show you are perhaps fearing. No two people react the same but it’s unlikely you will experience all the symptoms listed in the literature, nor will you experience them all the time. Stay hydrated and keep a symptom diary so you know what to expect as you move through it. Wishing you all the best. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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    I have metastatic Triple Negative Breast Cancer, in remission

  • How have you been? I found out today and not told my kids yet as they are old enough to google be heartbroken scared. It all reads so scary like I got the worst thing and the word aggressive has been used 3 times today I feel sick and terrified. I am scared to read scary stories x 

  • How are you now, I just found out today and I’m terrified x 

  • Hi  

    I am sorry to hear you are also going through this. Try to stay away from the scary stories if you can. The treatment landscape has changed so much in recent years and a lot of information out there pre-dates it. I am getting close to 5 years survival with metastatic TNBC but the data out there would have had my odds of that at less than ten percent. Do you know what your treatment plan is yet?

    I continue to be well, thank you for asking  

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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    I have metastatic Triple Negative Breast Cancer, in remission

  • No apparently they wouldn’t normally say as much that appointment but radiologist just bluntly told me you have IBC, 2 lumps mssses, it’s aggressive said 3 times, don’t tell your boys what type it is, said you will need to move fast - it was horrendous I was laying on table. She also said while wait 10 days for them to have there big meeting to decide plan to speed up I should have CT pet scan.
    then saw consultant who I told she said all this he didn’t look impressed, so has referred for ct scan, but said wouldn’t normally tell me this yet. He said I will get first available appointment after there meeting with the plan. 

    so glad your doing well, does anyone know if I approach doctors can they give me anxiety meds or anything? 

  • Just replied to your other note - I think you could make an appointment with your GP to discuss your anxiety. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission