New here! Stage 4 and still coming to term with it all

Hi

So sorry to hear that.....I was just diagnosed earlier this month so I understand how absolutely  frightened and scared you feel.

Did you already have surgery lumpectomy etc?

Sending lots of love and best wishes

No surgery …yet. They just want to try and shrink the tumour  with drugs first then rescan and check.  

Sorry to hear about your diagnosis aswell!

I have this horrible diagnosis but I rarely feel sick it’s such a strange feeling 

Hi

I am sorry to hear if your diagnosis. 

I was diagnosed in January 2024 with Invasive Lobular breast cancer with secondaries to bones.

I have been taking Ribociclib, Letrozole, Adcal tablets, Zoladex & denosumab injections for the past year. 

I have found that eating breakfast before taking the medication helps with the nausea. I still have the dull aches & pains, tiredness but have coped well on 600mg a day of the Ribociclib. 

Hi. Just curious, are you not all on chemotherapy? 

Thanks for the tip, I’m only a 3 weeks in so early days. Starting to get a few headaches and feel a little nausea. But haven’t lost appetite or anything else.

Hi, no they haven’t suggested chemo as yet. But maybe radiotherapy down the line. 
they said combo of ribo, letrozele and leuprorelin is the best for right now. 

I also carry gingernut biscuits with me and drink lemon & ginger tea to help with the nausea

Thanks for the tip. Luckily I love both those things :)